Events Calendar

Visit www.StepForwardtoCureTSC.org for a complete listing of upcoming walks.

May

05/25/2017 Free Adults with TSC Informational Call

Are you an independent or semi-independent adult with TSC?  Join the TS Alliance for a free, one-hour informational call on “Financial Assistance,” hosted by Ashley J. Pounders, BSN, RN, CCRN. To participate simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003# at 8 pm (Eastern), 7 pm (Central), 6 pm (Mountain), 5 pm (Pacific). If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

June

06/21/2017 Tuberous Sclerosis Complex Patient-Focused Drug Development Meeting

The TS Alliance is sponsoring a patient-focused drug development meeting (PFDD) with the FDA on June 21, 2017, at the Hyatt Regency on Capitol Hill in Washington, DC, from 8:30 a.m. to 4:30 p.m. The purpose of this meeting is for individuals affected by TSC and caregivers of dependent adults or children to communicate their perspectives on living with TSC to the FDA. This meeting is free and open to the public, and it will be webcast live online.  Click here for more information and to register online.

06/22/2017 2017 International Research Conference on TSC and LAM

Presented by The Rothberg Institute for Childhood Diseases, the 2017 International Research Conference on TSC and LAM, “Innovating Through Partnerships,” will be held in Washington, DC, co-hosted by the Tuberous Sclerosis Alliance and the LAM Foundation.  Click here for more information.

06/29/2017 Free Adults with TSC Informational Call

Are you an independent or semi-independent adult with TSC? Join the TS Alliance for a free, one-hour informational call on “Open Forum,” hosted by TS Alliance Adult Regional Coordinators. To participate simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003# at 8 pm (Eastern), 7 pm (Central), 6 pm (Mountain), 5 pm (Pacific). If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

July