Events Calendar

February

02/23/2017 Adults with TSC Informational Call

Are you an independent or semi-independent adult with TSC?  If so, please join the TS Alliance for a free informational call on “Open Forum” hosted by our Adult Regional Coordinators.  To participate, simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. The call will last one hour. Please note the time zones and start times:  8 pm (Eastern), 7 pm (Central), 6 pm (Mountain), 5 pm (Pacific). If you have questions or would like to receive handouts (if available) before the call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

March

03/01/2017 Sound Bites DC

Please join us at the Tuberous Sclerosis Alliance’s Sound Bites DC, An Evening of Food, Wine and Music, on Wednesday, March 1, 2017 at the National Press Club in Washington, DC. Click here for complete details and to purchase tickets.

03/30/2017 Adults with TSC Informational Call

Are you an independent or semi-independent adult with TSC?  If so, please join the TS Alliance for a free informational call on “Good Life Choices” hosted by Patti Ogden, APN, FNP, NP-C, Co-Director, University of Chicago TSC Clinic. To participate, simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. The call will last one hour. Please note the time zones and start times:  8 pm (Eastern), 7 pm (Central), 6 pm (Mountain), 5 pm (Pacific). If you have questions or would like to receive handouts (if available) before the call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

April

June

06/21/2017 Tuberous Sclerosis Complex Patient-Focused Drug Development Meeting

The TS Alliance is sponsoring a patient-focused drug development meeting (PFDD) with the FDA on June 21, 2017, at the Hyatt Regency on Capitol Hill in Washington, DC, from 8:30 a.m. to 4:30 p.m. The purpose of this meeting is for individuals affected by TSC and caregivers of dependent adults or children to communicate their perspectives on living with TSC to the FDA. This meeting is free and open to the public, and it will be webcast live online. We hope you will register and make plans to attend in person or online.

06/22/2017 2017 International Research Conference on TSC and LAM

Presented by The Rothberg Institute for Childhood Diseases, the 2017 International Research Conference on TSC and LAM, “Innovating Through Partnerships,” will be held in Washington, DC, co-hosted by the Tuberous Sclerosis Alliance and the LAM Foundation.  Click here for more information.

July