Boston Regional TSC & LAM Conference
The Tuberous Sclerosis Alliance and The LAM Foundation are co-hosting five Regional TSC & LAM Conferences in 2019! Focusing on patients and caregivers, conferences will take place in Boston (April 13), St. Louis (June 15), Chicago (September 7), Atlanta (September 21), and Los Angeles (November 2) in 2019.
The first Regional TSC and LAM Conference, co-hosted with The LAM Foundation is in Boston on Saturday, April 13 starting at 11 AM at the DoubleTree by Hilton in Danvers, MA! This free one-day conference will feature local leading researchers and clinicians specializing in TSC and lymphangioleiomyomatosis (LAM) including Drs. Brendan Manning, Elizabeth Thiele, Lisa Henske and David Kwiatkowski, as well as speakers from The ARC, Child Neurology Foundation, and MassMutual discussing transition issues. They will also include networking opportunities to meet other families and individuals from the area. These full-day conferences will offer a Pediatric Track (Track 1), a Transition Track (Track 2), and an Adult Track with sessions important to adults with TSC and LAM (Track 3).
Key topics include:
- Research updates, including upcoming clinical studies and trials for TSC and LAM
- Seizure types and treatments (pediatric and adult)
- Tumor growth and treatments
- Behavior and mental health
- Transitioning into adulthood
- Quality of life
- Kidneys and angiomyolipomas