Events Calendar

Visit www.StepForwardtoCureTSC.org for a complete listing of upcoming walks.

March

03/28/2019 Adults with TSC Informational Call

Are you an independent or semi-independent adult with TSC? If so, please join us for this free, one-hour informational call: “Open Forum,” presented by Adult Regional Coordinators, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific. To participate simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

April

04/07/2019 18th Annual Comedy for a Cure

Comedy for a Cure® is set to return for its 18th straight year on Sunday, April 7, 2019 at Academy LA.  Comedy for a Cure has developed a fabulous Comedian Committee that meets physically every year to kick off planning for the event’s talent lineup. The committee is chaired by Jim O’Heir, and members include Shane Brady, Mo Collins, Kate Flannery, Wendy Liebman, Melissa Peterman, Craig Shoemaker, Jimmy Shubert and Alex Skuby. This year, the Szylagi Family will be presented the Courage in Leadership Award for the compassionate dedication they have provided the organization since their 23-year-old daughter, Emily, was a young child. The event’s long-time comedian supporter, Wendy Liebman, will be honored with a TSC Champion award as will Dr. Joyce Wu of UCLA for her ongoing support for the advancement of treatments and therapies for TSC. For more information, please visit www.comedyforacure.org.

04/18/2019 Adults with TSC Informational Call

Are you an independent or semi-independent adult with TSC? If so, please join us for this free, one-hour informational call: “Anxiety Issues in TSC,” presented by Tanjala Gipson, MD, Director, TAND Clinic at LeBonheur Children’s Hospital, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific. To participate simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

May

05/02/2019 Adults with TSC Informational Call

Are you an independent or semi-independent adult with TSC? If so, please join us for this free, one-hour informational call: “Nutrition and TSC,” presented by Ashely Pounders, MSN, APN, FNP, LeBonheur Children’s Hospital, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific. To participate simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

05/10/2019 Third Annual Sound Bites

The TS Alliance is pleased to announce the Third Annual Sound Bites, An Evening of Food, Wine, and Music, will return to The Metropolitan on Friday, May 10, 2019. Sound Bites provides an opportunity to raise funds and recognize those who have made significant impacts in our fight against tuberous sclerosis complex (TSC).

The local event planning committee determined a change of seasons and a weekend setting would take this fabulous event to the next level. A special shout out goes to the locally grown talent, Chris Hawkey, Kat Perkins and Melissa Peterman, who continue to provide us with awesome support, drive and a personal commmitment to the success of Minnesota Sound Bites.

Find out more at www.tsalliance.org/MNSoundBites.

June

06/06/2019 Adults with TSC Informational Call

Are you an independent or semi-independent adult with TSC? If so, please join us for this free, one-hour informational call: “Open Forum,” presented by Adult Regional Coordinators, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific. To participate simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

September

09/25/2019 World Lung Day

Presented by the Forum of International Respiratory Societies, World Lung Day is a day for lung health advocacy and action, an opportunity for us all to unite and promote better lung health globally. Combined action, by all in the lung health community, will strengthen our call for World Lung Day to be an official world day, endorsed by the World Health Organization. It will also help raise awareness of ways to prevent, treat and cure respiratory disease. Click here for more information.

October

10/03/2019 TS Alliance 45th Anniversary Gala

Honorary Chair:  Jim O’Heir
Event Co-Chairs:  Jeannine and David Fitzmaurice

Join us in celebrating 45 years of inspiration, innovation and hope as we pay tribute to those who have made a tremendous impact on the TSC community:

  • The Engles Family, Courage in Leadership Award, for their generosity in advancing TSC collaborative research, scientific breakthroughs, and clinical care while encouraging trailblazing philanthropy.
  • Greenwich Biosciences, TSC Champion Award, for leading-edge integration of the patient perspective into the fabric of their company and pioneering therapy development.
  • Elizabeth Thiele, MD, PhD, TSC Champion Award, for her passionate, unwavering clinical care for individuals with TSC throughout a lifetime and enduring commitment to TSC-Associated Neuropsychiatric Disorders (TAND).

For more information, visit www.tsalliance.org/45Gala.