Visit www.StepForwardtoCureTSC.org for a complete listing of upcoming walks.
06/06/2019 Adults with TSC Informational Call
Are you an independent or semi-independent adult with TSC? If so, please join us for this free, one-hour informational call: “Open Forum,” presented by Adult Regional Coordinators, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific. To participate simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at email@example.com or (800) 225-6872.
06/20/2019 2019 International Tuberous Sclerosis Complex Research Conference: Changing the Course of TSC
More information will be available in the coming months. Please subscribe to TSC Alert for the latest updates on this meeting.
09/25/2019 World Lung Day
Presented by the Forum of International Respiratory Societies, World Lung Day is a day for lung health advocacy and action, an opportunity for us all to unite and promote better lung health globally. Combined action, by all in the lung health community, will strengthen our call for World Lung Day to be an official world day, endorsed by the World Health Organization. It will also help raise awareness of ways to prevent, treat and cure respiratory disease. Click here for more information.
10/03/2019 TS Alliance 45th Anniversary Gala
Honorary Chair: Jim O’Heir
Event Co-Chairs: Jeannine and David Fitzmaurice
Join us in celebrating 45 years of inspiration, innovation and hope as we pay tribute to those who have made a tremendous impact on the TSC community:
- The Engles Family, Courage in Leadership Award, for their generosity in advancing TSC collaborative research, scientific breakthroughs, and clinical care while encouraging trailblazing philanthropy.
- Greenwich Biosciences, TSC Champion Award, for leading-edge integration of the patient perspective into the fabric of their company and pioneering therapy development.
- Elizabeth Thiele, MD, PhD, TSC Champion Award, for her passionate, unwavering clinical care for individuals with TSC throughout a lifetime and enduring commitment to TSC-Associated Neuropsychiatric Disorders (TAND).
For more information, visit www.tsalliance.org/45Gala.