Events Calendar

Visit www.StepForwardtoCureTSC.org for a complete listing of upcoming walks.

June

06/06/2019 Adults with TSC Informational Call

Are you an independent or semi-independent adult with TSC? If so, please join us for this free, one-hour informational call: “Open Forum,” presented by Adult Regional Coordinators, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific. To participate simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

September

09/25/2019 World Lung Day

Presented by the Forum of International Respiratory Societies, World Lung Day is a day for lung health advocacy and action, an opportunity for us all to unite and promote better lung health globally. Combined action, by all in the lung health community, will strengthen our call for World Lung Day to be an official world day, endorsed by the World Health Organization. It will also help raise awareness of ways to prevent, treat and cure respiratory disease. Click here for more information.

October

10/03/2019 TS Alliance 45th Anniversary Gala

Honorary Chair:  Jim O’Heir
Event Co-Chairs:  Jeannine and David Fitzmaurice

Join us in celebrating 45 years of inspiration, innovation and hope as we pay tribute to those who have made a tremendous impact on the TSC community:

  • The Engles Family, Courage in Leadership Award, for their generosity in advancing TSC collaborative research, scientific breakthroughs, and clinical care while encouraging trailblazing philanthropy.
  • Greenwich Biosciences, TSC Champion Award, for leading-edge integration of the patient perspective into the fabric of their company and pioneering therapy development.
  • Elizabeth Thiele, MD, PhD, TSC Champion Award, for her passionate, unwavering clinical care for individuals with TSC throughout a lifetime and enduring commitment to TSC-Associated Neuropsychiatric Disorders (TAND).

For more information, visit www.tsalliance.org/45Gala.