Events Calendar

Visit www.StepForwardtoCureTSC.org for a complete listing of upcoming walks.

March

03/19/2020 TSC-Associated Neuropsychiatric Disorders (TAND) Webinar on Problem Behaviors Presented by Dr. Slocum Freeman

Dr. Slocum Freeman is board-certified as a doctoral-level behavior analyst and manages day treatment cases in the Severe Behavior Program at Marcus Autism Center. She is also appointed as an Emory University School of Medicine faculty member. Her research interests include methods for improving the efficacy and efficiency of the assessment and treatment of severe problem behavior.

Please join my meeting from your computer, tablet or smartphone. 
https://global.gotomeeting.com/join/870802477 

You can also dial in using your phone. 
United States: +1 (786) 535-3211

Access Code: 870-802-477

03/20/2020 TSC/LAM Virtual Town Hall: A COVID-19 Update

Plan now to join the Tuberous Sclerosis Alliance and The LAM Foundation for this special and free 1-hour online presentation including an open question-and-answer period.

Overview of COVID-19 and Framing the Discussion About Relevance of the Current Situation to Management of TSC

Peter Crino, MD, PhD, University of Maryland School of Medicine

Considerations for Impact of COVID-19 on Management of
Lung-Related Aspects of TSC and LAM

Frank McCormack, MD, University of Cincinnati School of Medicine

Considerations for Impact of COVID-19 on
Management of Neurological Aspects of TSC

Darcy Krueger, MD, PhD, Cincinnati Children’s Hospital Medical Center

Considerations for Impact of COVID-19 on
Management of Kidney-Related Aspects of TSC and LAM

John Bissler, MD, St. Jude Pediatrics Research Hospital

To participate online via Zoom Conferencing go to:

https://zoom.us/j/529035936

Or find your local call-in number at:

https://zoom.us/u/acaPOLartF

Meeting ID: 529 035 936

03/26/2020 Adults with TSC Informational Call: What is Behavior Intervention?

Are you an independent or semi-independent adult with TSC? If so, please join us for this free informational call,“What is Behavior Intervention?”presented by Gregory Woznicki, M.Ed, BCCS, CCTS-I, Community Options, Inc. of Southeastern PA, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific.

If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

To participate, use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. Each call’s length is one hour.

April

04/23/2020 Adults with TSC Informational Call: Anxiety in TSC

Are you an independent or semi-independent adult with TSC? If so, please join us for this free informational call, “Anxiety in TSC” presented by Karen D. Agricola, APRN, FNP-BC, Cincinnati Children’s Tuberous Sclerosis Clinic, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific.

If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

To participate, use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. Each call’s length is one hour.

May

05/14/2020 Adults with TSC Informational Call: Environmental Health – Spring Cleaning of Your Mind

Are you an independent or semi-independent adult with TSC? If so, please join us for this free informational call, “Environmental Health – Spring Cleaning of Your Mind” presented by Judith Shoulak, CEO of Relatively Speaking, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific.

If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

To participate, use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. Each call’s length is one hour.

June

06/25/2020 Adults with TSC Informational Call: Open Forum

Are you an independent or semi-independent adult with TSC? If so, please join us for this free informational call, “Open Forum” presented by Adult Regional Coordinators, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific.

If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

To participate, use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. Each call’s length is one hour.

October