TSC Matters

Archive for the ‘Upcoming Events’ Topic

Upcoming Community Events

Chicago Post-Holiday Party Sunday, January 12, 2020, 5 to 7:30 pm Alexian Brothers Medical Center Elk Grove Village, IL 60007 Please RSVP by January 6, 2020 with your food contribution and number of guests to Geri Greenberg at tscgreaterchicago@icloud.com or (847) 272-7747.   Chicago Tuberous Sclerosis Complex Grandparents Pizza Night Thursday, January 23, 2020 Location TBD after RSVP Please RSVP by January 13, 2020 to Geri Greenberg at tscgreaterchicago@icloud.com or (847) 272-7747. Read More

Upcoming Community Events

TSC Family Fun Day at Pullen Park Sunday, October 20, 2019 Pullen Park; Carousel Shelter 520 Ashe Ave Raleigh, NC 27606 Questions and RSVP: Karen Johnston at karen.m.whittington@gmail.com or (919) 451-1842   Southern California (Teen & Adult)  Evening of Bowling Sunday, November 17, 2019 Pins & Pockets Entertainment 32250 Mission Trail Lake Elsinore, CA 92530 Please RSVP by November 12 to Tara Palage at tara.palage@yahoo.com or (619) 977-4114 Read More

Join Us at the Regional TSC & LAM Conference in Los Angeles!

The fifth and final Regional TSC and LAM Conference, co-hosted with The LAM Foundation, is Saturday, November 2 starting at 8:30 AM at the UCLA Meyer & Renee Luskin Conference Center in Los Angeles, CA! This free one-day conference will feature local leading researchers and clinicians specializing in TSC and lymphangioleiomyomatosis (LAM). Register Now Read More

Upcoming Step Forward to Cure TSC Walks

Sometimes simple things can make a huge difference. Like simple steps, taken by caring people on a mission to improve the lives of those living with tuberous sclerosis complex (TSC). Step Forward to Cure TSC® is the TS Alliance’s largest national fundraising program, featuring a series of walks organized by local volunteers and families who are affected by TSC. Successfully launched in more than 30 communities across the United States, this grassroots effort not only generates vital funds for TSC research and support programs but also raises awareness about this disorder. Read More

Upcoming Adult Topic Calls

Are you an independent or semi-independent adult with TSC? If so, please join us for one of our upcoming free, one-hour informational calls: Thursday, October 24, 2019 “Open Forum” presented by Adult Regional Coordinators 8:00 P.M. (Eastern), 7:00 P.M. (Central), 6:00 P.M. (Mountain), 5:00 P.M. (Pacific) Thursday, November 14, 2019  “Sleep Issues and TSC” presented by Tanjala T. Gipson, MD; Director, TAND Clinic at LeBonheur Children’s Hospital 8:00 P.M. (Eastern), 7:00 P.M. (Central), 6:00 P.M. (Mountain), 5:00 P.M. (Pacific) To participate simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. If you have questions or would like... Read More

Upcoming Adult Topic Calls

Are you an independent or semi-independent adult with TSC? If so, please join us for one of our upcoming free, one-hour informational calls: Thursday, September 26, 2019 “LAM and TSC” presented by Karen D. Agricola, APRN, FNP-BC, Cincinnati Children’s Tuberous Sclerosis Clinic 8:00 P.M. (Eastern), 7:00 P.M. (Central), 6:00 P.M. (Mountain), 5:00 P.M. (Pacific) Thursday, October 24, 2019 “Open Forum” presented by Adult Regional Coordinators 8:00 P.M. (Eastern), 7:00 P.M. (Central), 6:00 P.M. (Mountain), 5:00 P.M. (Pacific) Thursday, November 14, 2019  “Sleep Issues and TSC” presented by Tanjala T. Gipson, MD; Director, TAND Clinic at LeBonheur Children’s Hospital 8:00 P.M.... Read More

Upcoming Community Events

Northern California Picnic Saturday, August 25, 2019, 11 AM – 2 PM Contact: Lilian Ansari, (510) 388-6889 Family style picnic with main dish provided. Please sign up to bring a side/dessert.   Youmans 14th Annual Family & Friends Tuberous Sclerosis Fundraising BBQ (Lakewood, CO) Saturday, September 7, 2019, 2 – 8 PM Join Bill and Nancy Youmans for a meal, friendship, fun and most importantly to join them in this fight against tuberous sclerosis complex (TSC). In addition to great food, door prizes and other fundraising activities will benefit the Tuberous Sclerosis Alliance (TS Alliance). Learn More   13th Annual Heather Joy TS/LAM Golf Outing... Read More