TSC Matters

Archive for the ‘Upcoming Events’ Topic

Upcoming Adult Topic Calls

Are you an independent or semi-independent adult with TSC? If so, please join us for one of our upcoming free, one-hour informational calls: Thursday, September 26, 2019 “LAM and TSC” presented by Karen D. Agricola, APRN, FNP-BC, Cincinnati Children’s Tuberous Sclerosis Clinic 8:00 P.M. (Eastern), 7:00 P.M. (Central), 6:00 P.M. (Mountain), 5:00 P.M. (Pacific) Thursday, October 24, 2019 “Open Forum” presented by Adult Regional Coordinators 8:00 P.M. (Eastern), 7:00 P.M. (Central), 6:00 P.M. (Mountain), 5:00 P.M. (Pacific) Thursday, November 14, 2019  “Sleep Issues and TSC” presented by Tanjala T. Gipson, MD; Director, TAND Clinic at LeBonheur Children’s Hospital 8:00 P.M.... Read More

Upcoming Community Events

Northern California Picnic Saturday, August 25, 2019, 11 AM – 2 PM Contact: Lilian Ansari, (510) 388-6889 Family style picnic with main dish provided. Please sign up to bring a side/dessert.   Youmans 14th Annual Family & Friends Tuberous Sclerosis Fundraising BBQ (Lakewood, CO) Saturday, September 7, 2019, 2 – 8 PM Join Bill and Nancy Youmans for a meal, friendship, fun and most importantly to join them in this fight against tuberous sclerosis complex (TSC). In addition to great food, door prizes and other fundraising activities will benefit the Tuberous Sclerosis Alliance (TS Alliance). Learn More   13th Annual Heather Joy TS/LAM Golf Outing... Read More

Join Us at the Regional TSC & LAM Conference in Chicago!

The third Regional TSC and LAM Conference, co-hosted with The LAM Foundation, is Saturday, September 7 starting at 8:30 AM at the Healtyh Science Campus at Loyola University in Chicago, IL! This free one-day conference will feature local leading researchers and clinicians specializing in TSC and lymphangioleiomyomatosis (LAM). Learn More Register Now Read More

Upcoming Step Forward to Cure TSC Walks

Sometimes simple things can make a huge difference. Like simple steps, taken by caring people on a mission to improve the lives of those living with tuberous sclerosis complex (TSC). Step Forward to Cure TSC® is the TS Alliance’s largest national fundraising program, featuring a series of walks organized by local volunteers and families who are affected by TSC. Successfully launched in more than 30 communities across the United States, this grassroots effort not only generates vital funds for TSC research and support programs but also raises awareness about this disorder. Read More

Upcoming Community Events

Upper Midwest Picnic (Minneapolis, MN) Sunday, June 23, 2019, 11 AM Contact: Alanna Spotts, alannaspotts@gmail.com Join us for an afternoon of food, fun and friends! Main dish provided, sign up to bring side dish or dessert.   North Dakota Gathering Saturday, June 29, 2019, 1:30 PM Contact: Mary Koponen, mjkoponen@cs.com Join us for an afternoon to meet other families in the community and a TSC 101 presentation.   Southern California Picnic Event Date: Saturday, June 29, 2019 Time: 12 – 3 PM Contact Name Tiffani Goff tiffanigoff@aol.com Details: Mingle with other families.  Sandwiches & drinks provided.   11th Annual Western PA Golf Tournament Saturday, July... Read More

Upcoming Step Forward to Cure TSC Walks

Sometimes simple things can make a huge difference. Like simple steps, taken by caring people on a mission to improve the lives of those living with tuberous sclerosis complex (TSC). Step Forward to Cure TSC® is the TS Alliance’s largest national fundraising program, featuring a series of walks organized by local volunteers and families who are affected by TSC. Successfully launched in more than 30 communities across the United States, this grassroots effort not only generates vital funds for TSC research and support programs but also raises awareness about this disorder. Read More

St. Louis Regional TSC & LAM Conference

The Tuberous Sclerosis Alliance and The LAM Foundation are co-hosting four more Regional TSC & LAM Conferences in 2019! Focusing on patients and caregivers, conferences will take place in St. Louis (June 15), Chicago (September 7), Atlanta (September 21), and Los Angeles (November 2) in 2019. The second Regional TSC and LAM Conference, co-hosted with The LAM Foundation is Saturday, June 15 starting at 8:30 AM at the Farrell Learning and Teaching Center (FLTC) at Washington University in St. Louis, MO! Read More

Bid Now in Our Exclusive Comedy for a Cure Silent Auction!

The Tuberous Sclerosis Alliance’s 18th Annual Comedy for a Cure happens this Sunday, April 7 in Hollywood.  This year for the first time, we are thrilled to offer you the opportunity to bid in our exclusive Comedy for a Cure Silent Auction even if you are unable to attend in person.  You’ll be able to bid early (and often!) via our special online auction site at www.comedyforacure.org.  Simply click “Auction Catalog” to view all available auction items. Please Note: A credit card is required to bid. Silent Auction bidding starts at 9 am Pacific Time, Thursday, April 4, and ends Sunday, April... Read More