TSC Matters

Archive for the ‘News & Announcements’ Topic

Subscribe to TSC Now

TSC Now is the TS Alliance’s podcast series, which features interviews with clinicians, researchers, TS Alliance staff and others on topics like TSC research, epilepsy surgery options, educational advocacy, TSC-associated Neuropsychiatric Disorders (TAND), seizure control and more. Haven’t listened yet? Check out our last three episodes: Read More

What TSC Means to Me Drawing Contest

In September, the Tuberous Sclerosis Alliance of Indiana held a “What Tuberous Sclerosis Complex (TSC) Means to Me” Drawing Contest for family members, caregivers, friends, and individuals with TSC. Contestants were asked to draw or paint a picture that depicts what TSC means to them. The winning pieces will be featured in the next Perspective Magazine, but above is a sneak peek of one of the winning pieces from Audra (age 10). Read More

Become a Junior Leader!

We are looking for Junior Leaders for the 2019-2020 school year. The TS Alliance offers this opportunity for young adults with TSC, or their siblings, to get involved with local Community Alliances to offer support while raising awareness for TSC. Throughout the school year, program participants will complete a series of awareness and support activities, concluding with an exit survey. Participants must be a young adult aged 17-23 with TSC, or a sibling, and be pursuing, or planning to pursue, some form of further education (i.e. certification, trade school, 2-year program, or 4-year+ program). Four applicants will be accepted into... Read More

TSC Clinic Experience of Care Survey

The TS Alliance would like to know about your experience at the TSC Clinic you/your child go to for care.  Your comments in this online survey will be shared with the TSC Clinic Director and staff.  The 5-minute survey is anonymous – your answers will not be linked to any information that can identify you.   We invite you to complete this survey any time after you’ve been to the TSC Clinic. If you have any questions, contact Jo Anne Nakagawa at jnakagawa@tsalliance.org. Take the Survey Read More

Listen to TSC Now

TSC Now is the TS Alliance’s podcast series, which features interviews with clinicians, researchers, TS Alliance staff and others on topics like TSC research, epilepsy surgery options, educational advocacy, TSC-associated Neuropsychiatric Disorders (TAND), seizure control and more. Haven’t listened yet? Check out our first three episodes: Episode 1: TSC Global Day, 45th Anniversary and the Future of TSC Research Episode 2: Epilepsy in TSC and Laser Ablation Surgery with Dr. Daniel Curry Episode 3: The 2019 International TSC Research Conference You can subscribe to TSC Now on Spotify, Apple Podcasts, TuneIn, Stitcherand Google Podcasts. Read More

TSC Clinic Experience of Care Survey

The TS Alliance would like to know about your experience at the TSC Clinic you/your child go to for care.  Your comments in this online survey will be shared with the TSC Clinic Director and staff.  The 5-minute survey is anonymous – your answers will not be linked to any information that can identify you.   We invite you to complete this survey any time after you’ve been to the TSC Clinic. If you have any questions, contact Jo Anne Nakagawa at jnakagawa@tsalliance.org. Take the Survey You can also submit a TSC Clinic Comment Form directly to the TS Alliance to share a compliment or concern... Read More

Join Team TSC and Run the NYC Marathon!

Team TSC is a dedicated group of people running on behalf of the 50,000 people in the US and 1 million worldwide with tuberous sclerosis complex (TSC). The Tuberous Sclerosis Alliance (TS Alliance) and Team TSC are proud to be an Official Charity Partner with the 2019 TCS New York City Marathon on Sunday, November 3, 2019. Five spots are still available to run with Team TSC! Read More

Subscribe to TSC Now

TSC Now is the TS Alliance’s podcast series, which features interviews with clinicians, researchers, TS Alliance staff and others on topics like TSC research, epilepsy surgery options, educational advocacy, TSC-associated Neuropsychiatric Disorders (TAND), seizure control and more. Read More