Our Leadership

Operating Board of Directors

The Tuberous Sclerosis Alliance Board of Directors has general oversight, fiduciary, policy development and ambassadorial responsibilities. The board develops and approves strategic plans that define the framework that guides the TS Alliance staff in daily activities, moving the organization closer to achieving its mission.

Decision-making is led by the Executive Committee, which is composed of the Chair, Vice Chair (Chair Elect), Secretary, Treasurer, Immediate Past Chair and the organization’s President & CEO.  Other committees include Finance/Development, Audit, Outreach, Governance, Compensation, Government Relations, Global Relations and Science/Medical.

Chris Russell, Chair
Coppell, TX

Peter Crino, MD, PhD, Vice Chair
Moorestown, NJ

William Joseph, Treasurer
State College, PA

Laura Marks, Secretary
Queens, NY

Timothy Dills, Immediate Past Chair
Great Falls, VA

Julie Blum
Potomac, MD

Matt Bolger
Lansing, MI

Cassandra Carroll
Oakland, CA

Mark Carroll
Saratoga, CA

Sara Chieffo
Washington, DC

David Coit
Cape Elizabeth, ME

Margaret Cox
Vestavia, AL

Andrew Duffy, International Partner Member
Toronto, ON

Bonnie Hogue Duffy
Chevy Chase, MD

Steven Goldstein, CPA, FFS
Westport, CT

Rob Grandia
Riverside, CA

Dana Holinka
Northglenn, CO

Heather Lens
Westville, OK

Darcy Krueger, MD, PhD
Mason, OH

Jim Maginn
Manhattan Beach, CA

Diane McSwain
Crystal Lake, IL

Mustafa Sahin, MD, PhD
Needham, MA

Sean Shillinger
Adamstown, MD

Judy Shoulak
Corcoran, MN

Matthew Simonian
Humble, TX

Vanessa Vasquez
Miami, FL

Paul Waxlax
Denver, CO

Tara Zimmerman
Reno, NV

TS Alliance Endowment Fund Board of Directors

The TS Alliance Endowment Fund is a separate fiduciary organization specifically chartered to receive gifts that will be invested to generate an income stream to help fulfill the mission of the TS Alliance. The Endowment Fund will ensure the TS Alliance has an ongoing source of funding to better serve those touched by tuberous sclerosis complex through research, support services and education.

Doug Loftus, Chair
Cincinnati, OH

Michael Augustine, JD, Secretary
San Gabriel, CA

Hal Tearse, Treasurer
Independence, MN

Marion Adams
Mobile, AL

Mark Carroll
Saratoga, CA

Robert W. Groves, III
Austin, TX

William Joseph
State College, PA

Paul Waxlax
Denver, CO

Corporate Advisory Board

The TS Alliance’s Corporate Advisory Board includes a group of dedicated professionals from a variety of industries who provide guidance and strategic support and act as advisors to the President and CEO.  This board will be called upon to offer assistance in the areas of business planning and operational growth, marketing and public relations, development and fundraising, infrastructure, technology and human resources.

Wilfred Cooper, Sr., Honorary Chair
WNC & Associates

Julianne Moore, Honorary Chair

E. Martina Bebin, MD, MPA
University of Alabama TSC Clinic

Rita DiDomenico
Vice President

Orrin Devinsky, MD
NYU Epilepsy Center

Rusty Field
Upsher-Smith Laboratories, LLC

David Fitzmaurice
Director of Business Development
Sealed Air

Julian S. Gangolli
Independent Advisor

Gail Gershon

Ken Kocher
Former President
LIDS Sports Group

Laura S. Lubbers, PhD
Chief Scientific Officer
Citizens United for Research in Epilepsy (CURE)

Alan Marshall
Director, Customer Engagement
Greenwich Biosciences

Ted Mastroianni

David Michaels
Senior Vice President
Wells Fargo Bank, NA

Darren Miles
Vice President, International Operations
Dairy Queen

MaryJane Mudd

Sean C. Nolan
Encoded Therapeutics, Inc.

Rebecca Anhang Price, PhD

Henry Shapiro
MarketCast Group

John Thorpe Richards, Jr.
Bogorad and Richards, PLLC

Marc Shapses
Executive Managing Director
Savills Studley