Our Leadership

Operating Board of Directors

The Tuberous Sclerosis Alliance Board of Directors has general oversight, fiduciary, policy development and ambassadorial responsibilities. The board develops and approves strategic plans that define the framework that guides the TS Alliance staff in daily activities, moving the organization closer to achieving its mission.

Decision-making is led by the Executive Committee, which is composed of the Chair, Vice Chair (Chair Elect), Secretary, Treasurer, Immediate Past Chair and the organization’s President & CEO.  Other committees include Finance, Audit, Outreach, Governance, Compensation, Government Relations, Science/Medical and Fund Development.

Beth Dean, Chair 
Grayslake, IL

Chris Russell, Vice Chair
Coppell, TX

Jim Maginn, Treasurer
Manhattan Beach, CA

Cassandra Carroll, Secretary
Oakland, CA

Timothy Dills, Immediate Past Chair
Great Falls, VA

Rebecca Anhang Price, PhD 
Chevy Chase, MD

Martina Bebin, MD, MPA
Athens, AL

John Bissler, MD
Memphis, TN

Michael Caggiano 
McLean, VA

Sara Chieffo
Washington, DC

David Coit
Cape Elizabeth, ME

Margaret Cox
Vestavia, AL

Peter Crino, MD, PhD
Moorestown, NJ

Andrew Duffy, Ex-Officio
Toronto, ON

Bonnie Hogue Duffy
Chevy Chase, MD

David Fitzmaurice
Wyckoff, NJ

Rob Grandia
Riverside, CA

Tom Gwinn
Parkland, FL

Dana Holinka
Northglenn, CO

Laura Lubbers, PhD
Perkasie, PA

Brendan Manning, PhD
Boston, MA

Darren Miles 
Edina, MN

Adolfo Orive
Dallas, TX

Matthew Simonian
Humble, TX

Tara Zimmerman
Reno, NV

TS Alliance Endowment Fund Board of Directors

The TS Alliance Endowment Fund is a separate fiduciary organization specifically chartered to receive gifts that will be invested to generate an income stream to help fulfill the mission of the TS Alliance. The Endowment Fund will ensure the TS Alliance has an ongoing source of funding to better serve those touched by tuberous sclerosis complex through research, support services and education.

Doug Loftus, Chair
Cincinnati, OH

Michael Augustine, Secretary
San Gabriel, CA

Rita DiDomenico, Treasurer
Staten Island, NY

James Achterhof
Palos Park, IL

Mark Carroll
Saratoga, CA

Hal Tearse
Independence, MN

Corporate Advisory Board

The TS Alliance’s Corporate Advisory Board includes a group of dedicated professionals from a variety of industries who provide guidance and strategic support and act as advisors to the President and CEO.  This board will be called upon to offer assistance in the areas of business planning and operational growth, marketing and public relations, development and fundraising, infrastructure, technology and human resources.

Wilfred Cooper, Sr., Honorary Chair
WNC & Associates

Orrin Devinsky, MD
NYU Epilepsy Center

Gail Gershon
Executive Director, Community Leadership
Gap Foundation Gap Inc.

Ken Kocher
Former President
LIDS Sports Group

Alan Marshall
Director, Customer Engagement
Greenwich Biosciences

Ted Mastroianni

Julianne Moore

MaryJane Mudd
MJM Communications

Sean C. Nolan
President & CEO
AveXis, Inc.

Henry Shapiro
Chief Executive Officer

John Thorpe Richards, Jr.
Bogorad and Richards, PLLC

James S. Richter
Winston & Strawn LLP

Marc Shapses
Executive Managing Director
Savills Studley

Judy Shoulak
CEO & Founder
Relatively Speaking