TSC Alert

Archive for March, 2020

Deadline Extended: Research Grant LOIs Due April 27

  |  Grants

The TS Alliance has extended the deadline to submit letters of intent for Postdoctoral Fellowships and Early Stage Investigator Research Grants. Learn more about our funding mechanisms and eligibility requirements on our Grants page. Letters of reference are required for Postdoctoral Fellowships, so please begin the LOI process early to ensure your references have time to prepare and submit their letters. Please submit your LOIs through proposalCENTRAL by Monday, April 27 at 11:59 pm Eastern Time. For more information please review our full 2020 Program Guidelines and and LOI application instructions carefully. Please note important changes to eligibility criteria in 2020: Only researchers meeting NIH criteria for Early Stage Investigators are eligible for…

New Clinical Trial Finder Tool

The TS Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here. Are you conducting a study involving patients with TSC that isn’t listed in the online tool? Contact Zoë Fuchs, TS Alliance Science Project Coordinator, at zfuchs@tsalliance.org.

Contribute to a Study About Standard Neurological Care in TSC Children

Information about the Warsaw Medical University study: Tuberous sclerosis complex (TSC) is a disease with a very high risk of epilepsy and its comorbidities, such as intellectual disability and autistic behavior with significant impact on the daily life of families with this condition. We are currently conducting an inquiry study about a worldwide standard practice of neurological care of children with TSC and we would like to invite you to take part in this study. The aim of this project is to explore current standards of neurological care for children with TSC considering epilepsy diagnosis and management in the leading…

TS Alliance Partners with NeurologyLive™

  |  News

The Tuberous Sclerosis Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up-to-date on clinical trial news, FDA updates and more. Subscribe

TSC Biosamples Available at No Cost to Researchers

Are you looking for samples from TSC patients to use in your lab? The TSC Biosample Repository has a growing collection of samples tied to phenotypic data. In most cases, we can ship these samples at no charge to the investigator. To date, we have shipped 808 samples for use in diverse projects, ranging from quantification of sphingolipids in plasma to investigating mitochondrial DNA heteroplasmy. As of March 1, 2020, the TSC Biosample Repository has collected: 355 buccal cell samples for DNA isolation 309 blood samples from which plasma and white blood cells have been isolated 13 tissue samples, including 12 frozen (10 also have a matched…

Early Stage Investigator Research Grant LOIs Due April 6

  |  Grants

The TS Alliance is now accepting letters of intent for Postdoctoral Fellowships and Early Stage Investigator Research Grants. Learn more about our funding mechanisms and eligibility requirements on our Grants page. Letters of reference are required for Postdoctoral Fellowships, so please begin the LOI process early to ensure your references have time to prepare and submit their letters. Please submit your LOIs through proposalCENTRAL by Monday, April 6 at 11:59 pm Eastern Time. For more information please review our full 2020 Program Guidelines and LOI application instructions carefully. Please note important changes to eligibility criteria in 2020: Only researchers meeting NIH criteria for Early Stage Investigators are eligible for TS Alliance grants this…

COVID-19 Considerations for TSC Medical Professionals

  |  News

Because current data do not provide clear answers for many TSC patients’ questions, drawing on opinions from key leaders in TSC clinical care, the TS Alliance’s Science and Medical Committee offers some general considerations for how to answer questions from TSC patients about COVID-19 and how to provide individualized care for TSC patients during the COVID-19 pandemic based on the information available to date in the publication listed below. Download Physician Recommendations You can see all of the TS Alliance’s COVID-19 recommendations here.