To improve quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support.
Our powerful impact
$37M
invested in TSC research
3
FDA approved drugs
$113M
appropriated from federal advocacy
Spotlight on TSC Alliance
2024 marks the 50th anniversary of the TSC Alliance®! Throughout the year, we’ll celebrate five decades of progress as well as look forward with much promise for the future.
For the last two years the TSC Alliance team and our partners at Teramark have been hard at work redesigning the site and we are thrilled to share it with you. The new site was designed to meet the needs of the TSC community, with a simpler navigation and design, an expanded TSC Navigator to support individuals with TSC and their families throughout their lives, and better integration of all our digital resources, including our podcast series, publications, and videos.
If you have feedback about the new site, we’d love to hear it. Please go to our Contact us page and scroll down to “Send us a message.” If you have comments regarding specific pages please include the link in your message.
This website is made possible through sponsorships from Jazz Pharmaceuticals, Nobelpharma America, LLC, Livanova, Mallickrodt Pharmaceuticals, Marinus, Upsher-Smith Laboratories, LLC and MassMututal.