Steven L. Roberds, PhD

Chief Scientific Officer

Steve joined the TS Alliance staff in 2011 as Chief Scientific Officer. In this role, Steve leads the development and execution of the TS Alliance’s research strategy through partnerships and conversations with all stakeholders, including individuals and families affected by TSC, basic and clinical researchers, healthcare providers, government agencies involved in medical research, and other non-profit organizations. In 2012, Steve led the implementation of the first TSC Clinical Consensus Conference since 1998. In 2015, he worked with program officers at the National Institutes of Health to design and carry out a workshop to update the TSC research strategy for the next ten years. To move this updated strategy forward, Steve drove the creation of two TS Alliance-led collaborative projects: the TSC Preclinical Consortium to accelerate testing of potential new treatments and the TSC Biosample Repository to collect and share biosamples from individuals enrolled in the TSC Natural History Database. Steve was awarded his PhD in Pharmacology from Vanderbilt University in 1992, after which he was introduced to rare disease research as a postdoctoral fellow at the University of Iowa studying the biology and genetics of muscular dystrophies. He then began a 16-year research career in the pharmaceutical industry. Immediately prior to joining the TS Alliance, Steve was an Associate Research Fellow and project leader responsible for driving global project teams toward new human proof-of-concept studies to repurpose Pfizer compounds for new indications. Steve has three grown children and loves exploring all the history, food, and music the Washington, DC area has to offer with his wife Mary.

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