IMPORTANT: Notice of Blackbaud data incident.

On July 16, 2020 one of our vendors, Blackbaud, informed us it suffered a ransomware attack that resulted in potential unauthorized access to certain information maintained by its systems. Blackbaud, an industry-leading cloud computing provider, is where we house our constituent and donor database. Unfortunately, Blackbaud’s incident impacted a significant number of organizations, including the Tuberous Sclerosis Alliance (TS Alliance).

Once we learned about this event, we immediately commenced an investigation to determine what, if any, sensitive TS Alliance data was potentially affected. This investigation is ongoing. Blackbaud advised they worked with forensic experts and law enforcement to investigate the incident. In addition, Blackbaud informed us the hackers did not access credit card information and that bank account information, username, passwords and Social Security numbers stored in fields encrypted by Blackbaud were not accessible to the hackers.

However, in an abundance of caution, we are reviewing the data included in our Blackbaud database to confirm Blackbaud’s assurances and better understand what occurred. Please note: To date, we have not received any information from Blackbaud indicating your information was specifically accessed or acquired by the unknown actor.

Blackbaud reports it has taken all necessary steps to secure its data, including implementing additional security enhancements to its platforms. Blackbaud also reported this incident to the FBI.

Please know the TS Alliance and our Board of Directors take this incident and the security of the personal information entrusted to us very seriously, and we are diligently working to determine the full nature and scope of what happened. While we work to better understand this event, we are informing the valued members of the TSC community in the interest of transparency. We sincerely regret any concern this incident may cause you and will communicate as necessary pending the result of our investigation.

If you have any questions, please contact Lisa Moss, Senior Director, Donor Relations, at lmoss@tsalliance.org or 301-562-9890 ext. 222.  You can also review: