News

Plan now to join us at a 2019 educational conference.

The Tuberous Sclerosis Alliance and The LAM Foundation will co-host five Regional TSC & LAM Conferences in 2019 aimed at patients and caregivers in:

  • Boston: April 13
  • Louis: June 15
  • Chicago: September 7
  • Atlanta: September 21
  • Los Angeles: November 2

These free one-day conferences will feature local leading researchers and clinicians specializing in TSC and lymphangioleiomyomatosis (LAM), as well as speakers from The ARC, Child Neurology Foundation and MassMutual discussing transition issues. They will also include networking opportunities to meet other families and individuals from the area. These full-day conferences will offer a Pediatric Track (Track 1), a Transition Track (Track 2) and an Adult Track with sessions important to adults with TSC and LAM (Track 3).

Key topics will include:

  • Research update, including upcoming clinical studies and trials for TSC and LAM
  • Seizure types and treatments (pediatric and adult)
  • Tumor growth and treatments
  • Behavior and mental health
  • Transitioning into adulthood
  • LAM
  • Genetics
  • Quality of life
  • Kidneys and angiomyolipomas

People in each region will gather together to attend these conferences to make stronger connections with peers, researchers and clinicians in their community. Families and individuals who live with TSC and LAM, professionals who work with them and extended supporters will use the meetings to learn more about current treatment options, basic and transitional research, and clinical trials and to spend time with other people affected by TSC and LAM. These conferences will also allow the TS Alliance and The LAM Foundation to reach newly diagnosed families, identify new constituents and provide fuller support in those communities.

Online Registration Opens Soon

The free registration will include lunch. Please note: Childcare will not be available.

Questions?

Please contact Shelly Meitzler at (240) 638-4650 or smeitzler@tsalliance.org.