Newly Diagnosed

Get Support Now

In your journey with tuberous sclerosis complex (TSC), you are not alone.

Get Immediate Support

For those needing instant help, the TS Alliance Outreach Department offers a wide range of support, including information about finding physicians, school-related issues and more.  Dena Hook, Vice President of Outreach, is available to answer any questions you may have and to provide you with resources and information.  If you have any issues or concerns, call Dena at 1-800-225-6872 or 301-562-9890 or email her at dhook@tsalliance.org.

The TS Alliance is Here to Help

Regardless of the age at diagnosis, the journey you take with tuberous sclerosis complex (TSC) can certainly be daunting; many people say having TSC is like walking through a minefield, because you never know when another symptom will arise.  But you can rest assured the TS Alliance and our volunteers will always be available when you need information, support or just a sympathetic ear.

You can order a free TSC information packet here.  For additional information, you may want to download our comprehensive booklet called An Introduction to TSC or a more brief brochure called The TS Alliance is Here to Help.

If your healthcare provider needs more information about the latest in TSC diagnosis, surveillance and management, please download this letter for him/her to review.