TSC Alert

International TAND Research Project Awarded Funding

Congratulations to Drs. Petrus de Vries (University of Cape Town) and Anna Jansen (UZ Brussel – Vrije Universiteit Brussel) on being awarded funding from the Tuberous Sclerosis Association and the King Baudouin Foundation. Funding for the TANDem Project was awarded at a King Baudouin Foundation awards ceremony on Thursday, April 4, 2019.

“The TANDem Project will bring together a worldwide team of families affected by TSC, researchers and clinicians to provide scientific evidence for greater TAND intervention and treatment. The two-part project will first focus on the development of a self-report TAND checklist and identification smartphone app, to measure how people are affected by TAND. The second part of the study will investigate the best ways to treat TAND, including agreement on suitable clinical guidelines for TAND. Following this work in identifying and treating TAND, the TANDem Project will help to prepare a global team of TAND researchers to raise awareness and lead future research into TAND.”

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