Individuals & Families


Community Alliance

TS Alliance of Wisconsin →

TSC Connect Contacts

Adult Regional Coordinator

Seth Fritts (Adult), Arvada, CO, 917-324-6708,

Dependent Adult Transition Resource Coordinator

Lori Denzine (Parent of an Adult), Menomonie, WI, 715-556-8756,

Education Parent Mentor

Julie Scroggins (Parent), Kenosha, WI, 224-619-6945,

TSC Clinics

American Family Children’s Hospital Multidisciplinary Pediatric Neurocutaneous Disorders’ Clinic
Director: Neha J. Patel, MD
Coordinator: Amber Alekna, RN, BSN
Age Range Seen: Children and Young Adults
Clinic Frequency: Bi-monthly on two alternating Mondays of the month.
Out-of-State Medicaid Policy: information currently not available
To schedule an appointment or more information call (608) 263-6420 Opt 3 and speak to Amber Alekna.

The Neurofibromatosis and RASopathy Program at Children’s Hospital of Wisconsin
Director: Donald Basel, MD
Co-Director: Dawn Siegel, MD
Coordinator: Lisa Koneazny, RN, BSN
Age Range: Children and Adults.
Clinic Frequency: Weekly, every Wednesday all day.
For Clinic Information call (414) 266-2935 and to schedule an appointment call (414) 266-3347.