Individuals & Families

West Virginia

Community Alliance

TS Alliance of Kentucky/West Virginia →

TSC Connect Contacts

Adult Regional Coordinator

Kathy Henkel (Adult and Parent), Waynesboro, VA, 540-949-0582, uneakmom@gmail.com

Dependent Adult Transition Resource Coordinator

Tammy Kouns (Parent), Ashland, KY, 606-571-3882, tammyskouns@gmail.com

 

Nearby TSC Clinics

MARYLAND

Baltimore
Tuberous Sclerosis Clinic at Kennedy Krieger Institute
Director: Jacqueline Weissman, MD (effective 7.1.2016)
Administrative Coordinator: Emily A. Thomas
TSC Clinic Ambassador: Jocelyn Cenna, portvue@comcast.net
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Out-of-State Medicaid Policy: Accepts Delaware, District of Columbia, New Jersey
For more information or to schedule an appointment, contact Emily A. Thomas at 443-923-2746.  For medical questions, ask to speak to one of the neurology team nurses associated with the TSC clinic.

OHIO

Cincinnati
The Tuberous Sclerosis Clinic
Founding Director: David N. Franz, MD
Director: Darcy Krueger, MD, PhD
Administrative Coordinator: Melody Gulleman
Coordinators: Cindy Tudor, CPNP and Karen Agricola, CFNP
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Out-of-state Medicaid: Accepts pending pre-authorization from the Medicaid provider.  There are financial assistance programs for those living in Indiana: Dearborn county; Kentucky: Boone, Campbell and Kenton counties; and Ohio: Butler, Clermont, Hamilton and Warren counties.  Ohio residents may qualify for the H-Cap program, which is for low income and based on federal poverty guidelines.  For further questions regarding these programs, contact Financial Services at (513) 636-0201.
To schedule an appointment or for information, contact Melody Gulleman at (513) 636-4222 or email TSclinic@cchmc.org
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Cleveland
TSC Care at CCF (The Cleveland Clinic)
Director: Ajay Gupta, MD, FAAP
Coordinator: Paula Klima, RN
Age Range: Children and young adults up to age 21 year old.
Clinic Frequency: Weekly on Wednesday. Scheduling is flexible to meet patients’ needs whenever possible.
For more information or to schedule an appointment, email tsc_care@ccf.org or call 216-445-0601.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Columbus
Nationwide Children’s TSC Clinic
Director: E Steve Roach, MD
Co-Director: Monica P. Islam, MD
Coordinator: Joey Burns, RN, BSN, CNRN
Clinic Ambassador: Lola Centeno, ohiotsc@yahoo.com
VIRGINIA

Charlottesville
The University of Virginia (UVA) Tuberous Sclerosis Clinic
Director: Howard Goodkin, MD, PhD
Co-Director: Erika Axeem, MD (Pediatrics)
Co-Director: Derek Bauer, MD (Adults)
Coordinator:  Brooke Henry, RN, BSN
Age Range: Children and Adults
Clinic Frequency: Monthly
To schedule an appointment, call (434) 924-2706 and ask to speak to Debbie Roberts.  For more information about the clinic call Brooke Henry, RN, BSN at (434) 924-8672.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.