Individuals & Families


Community Alliances

TS Alliance of WASHINGTON, DC/Virginia →

TSC Connect Contacts

Adult Regional Coordinator

Kathy Henkel (Adult and Parent), Waynesboro, VA, 540-949-0582,

Dependent Adult Transition Resource Coordinator

Kathi Dills (Parent and Chair, TS Alliance of Washington, DC/Virginia), Great Falls, VA, 703-444-9512,

Education Parent Mentors

Jill Fischer (Parent), Norfolk, VA, 757-636-7478,
Brooke Carpenter (Parent), Burke, VA, 703-678-7681,

TSC Clinics

The University of Virginia (UVA) Tuberous Sclerosis Clinic
Director: Howard Goodkin, MD, PhD
Co-Director: Erika Axeem, MD (Pediatrics)
Co-Director: Derek Bauer, MD (Adults)
Coordinator:  Brooke Henry, RN, BSN
Age Range: Children and Adults
Clinic Frequency: Monthly
To schedule an appointment, call (434) 924-2706 and ask to speak to Debbie Roberts.  For more information about the clinic call Brooke Henry, RN, BSN at (434) 924-8672.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Fairfax and Washington, DC
Tuberous Sclerosis Program at Children’s National Health System
Director: William McClintock, MD
Co-Director: Amy Kao, MD
Coordinator:  Nancy Elling, RN, BSN, CPN
Age Range Seen: Children and Adults
Clinic Frequency: Monthly, the second Monday at the Regional Outpatient Center in Fairfax, VA and the third Thursday at Children’s National Medical Center.
For information about the TSC Clinic contact Nancy J. Elling, RN, BSN, CPN at (571) 405-5961. To schedule an appointment, call the Neurology appointment line at (202) 476-3611.

Virginia Commonwealth University (VCU) Health System
Director: Lawrence Morton, MD
Co-Director: Soundarya Gowda, MD
Coordinator: Laura Sutherland, RN
Age Range: Children and Adult.
Clinic Frequency: Monthly.
For Clinic Information call (804) 828-9869 and to schedule an appointment call (804) 828-2467.