Individuals & Families


Community Alliances

TS Alliance of WASHINGTON, DC/Virginia →

TSC Connect Contacts

Adult Regional Coordinator

Kathy Henkel (Adult and Parent), Waynesboro, VA, 540-949-0582,

Dependent Adult Transition Resource Coordinator

Kathi Dills (Parent and Chair, TS Alliance of Washington, DC/Virginia), Great Falls, VA, 703-444-9512,

Education Parent Mentors

Jill Fischer (Parent), Norfolk, VA, 757-636-7478,
Brooke Carpenter (Parent), Burke, VA, 703-678-7681,

TSC Clinics

The University of Virginia (UVA) Tuberous Sclerosis Clinic
Director: Howard Goodkin, MD, PhD
Co-Director: Erika Axeem, MD (Pediatrics)
Co-Director: Derek Bauer, MD (Adults)
Coordinator:  Brooke Henry, RN, BSN
Age Range: Children and Adults
Clinic Frequency: Monthly
To schedule an appointment, call (434) 924-2706 and ask to speak to Caitlin Jenkins.  For more information about the clinic call Brooke Henry, RN, BSN, at (434) 924-8672.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Fairfax and Washington, DC
Washington Metro Area Tuberous Sclerosis Clinic at Children’s National Medical Center
Director: William McClintock, MD
Co-Director: Amy Kao, MD
Coordinator:  Nancy Elling, RN, BSN, CPN
Age Range Seen: New patients up to young adults.
Clinic Frequency: First and third Thursday at Children’s National Medical Center in Washington DC and monthly on the second Monday at the Regional Outpatient Center in Fairfax, VA.
For information about the TSC Clinic contact Nancy J. Elling, RN, BSN, CPN at (571) 405-5961. To schedule an appointment, call the Neurology appointment line at (202) 476-3611.

Virginia Commonwealth University (VCU) Health System
Director: Lawrence Morton, MD
Co-Director: Soundarya Gowda, MD
Coordinator: Laura Sutherland, RN
Age Range: Children and Adult.
Clinic Frequency: Monthly
For Clinic Information and to schedule an appointment call (804) 828-9350.