Individuals & Families


Community Alliance

TS Alliance of New England →

TSC Connect Contacts

Allyson D’Amario (Parent and Community Alliance Chair), Holliston, MA, 617-512-2139, Allyson.damario@gmail.com

Adult Regional Coordinator

Phil Tallman (Parent and Adult), Lisle, IL, 630-532-0979, Philip.tallman@gmail.com

Nearby TSC Clinics


The Carol and James Herscot Center for Children and Adults with Tuberous Sclerosis Complex 
Director: Elizabeth Thiele, MD, PhD
Coordinator: Jan Paolini, RN, MSN, PNP
Age Range Seen: Children and Adults
Clinic Frequency: Weekly on Fridays and every other Tuesday, as well as on an as needed basis.
To schedule an appointment please call (617) 726-0241.

Multi-Disciplinary Tuberous Sclerosis Program
Boston Children’s Hospital
Director: Mustafa Sahin, MD, PhD
Coordinator: Jennifer McCrave, RN, BSN, CNRN
Age Range Seen: Children and Young Adults up to age 25 years old.
Clinic Frequency: Every other week.
Out-of-State Medicaid Policy: Accepts Maine, New Hampshire, Rhode Island and Vermont.
To schedule an appointment please call Elizabeth Beers at (617) 355-2711.


Associated Neurologists of Southern Connecticut, a member of the St. Vincent’s Multispecialty Group
Director: Nicholas Blondin, MD
Coordinator: Joseph Guzman, RN
Age Range Seen: New patients 16 years and older.
Clinic Frequency: Monday – Friday, 9:00 am – 5:00 pm
For Clinic Information and to schedule an appointment call (203) 333-1133.

Neurogenetics Clinic at Connecticut Children’s Medical Center
Director: Francis DiMario, Jr., MD
Coordinator: Alyssa Clark, RN, CNRN
Age Range Seen: New patients up to age 25 years old.
Clinic Frequency: Weekly, half-day on Tuesday and half-day first Wednesday of each month.
To schedule an appointment, call (860) 837-7500. 
Esta clínica cuenta con un doctor o un empleado que habla un poco de español.