Texas
Community Alliances
TS Alliance of Dallas/Ft. Worth →
TSC Connect Contacts
- Joy Graydon (Parent of an Adult and Co-Chair, TS Alliance of Dallas/Ft. Worth), Mesquite, TX, 904-303-0869, JGraydon10@hotmail.com
- Leslie Russell (Parent of an Adult and Co-Chair, TS Alliance of Dallas/Ft. Worth), Coppell, TX, Home: 972-471-5522, Cell: 972-658-8872, leslie.russell2@verizon.net
- Heather Little (Parent and Co-Chair, TS Alliance of Houston), Houston, TX, 702-606-9235, heatherrlittle@gmail.com
- Lucy Martinez (Parent and Co-Chair, TS Alliance of Houston), Porter, TX, 832-423-6989, Lucy.martinez@encompasshealth.com
- Tricia Bodnar (Parent of an Adult), Dallas, TX, 972-931-9946, triciachildren@att.net
- Cathy and Philip Conroy (Siblings), Colleyville, TX, 817-498-9190, combatsix@aol.com
- Jyoti Cameron (Adult), Houston, TX, 713-302-6397
- Kati Maciulewicz-Gass (Adult), Grapevine, 817-308-1486, KMAC71085@yahoo.com
- Carla Littlejohn (Relative), Garland, TX, 972-278-2324, mrsliljohn@yahoo.com
- Kayla Crabtree (Young Adult), Ft. Worth, TX, 817-298-7219, kayla0687@yahoo.com
- Chris Russell (Parent), Coppell, TX, Home: 972-471-5522, Cell: 972-533-0898
- Mary Seward (Parent), San Antonio, TX, 210-408-7713, mseward@satx.rr.com
- Constance Smith (Parent), Irving, TX, 972-579-0580, pat.conniesmith@verizon.net
- Scott and Mandy Striegel (Parents), Little Elm TX, 972-668-5098, Striegel3@att.net
- Sherry Tisdale (Parent), Gilmer, TX, 903-762-2842, sherryluvsherdog@aol.com
- Cristy Wade (Parent), Belton, TX, 254-780-3183, tryscience@hotmail.com
- Sheryl Kubala (Parent), Cedar Park, TX, 512-659-9946, sheryl.kubala@gmail.com
- Katie Maciulewicz-Gass (Young Adult), Grapevine, TX, 817-308-1486, KMAC71085@yahoo.com
- Kathryn Groves (Parent), Leander, TX, 810-588-6034, kathryn.a.groves@icloud.com
- Sylvia Sparby (Grandparent), Euless, TX, 817-779-2137, harleygirl211@hotmail.com
- Cassie Jimenez (Parent), Sachse, TX, 214-335-5160, cassie_j3@yahoo.com
- Rachael Jackson (Parent), Sugar Land, TX, 281-620-2752, rachyjack@gmail.com
- Emily Presley Mylar (Young Adult), San Antonio, TX, 210-464-0000, presleymylar910@gmail.com
- Preston Fitzgerald (Young Adult), Flower Mound, TX, 214-537-2598, prestonfitzgerald3@gmail.com
Adult Regional Coordinator
Jake Irby (Adult), Austin, TX, 512-586-8895, Irby.jake@gmail.com
Dependent Adult Transition Resource Coordinators
Laura Buckner (North/West), 512-232-0741, Laura.g.buckner@gmail.com
Lucy Martinez (South/East), 832-423-6989, Lucy.martinez@encompasshealth.com (Speaks Spanish)
Leslie Russell (Dallas/Ft. Worth), Home: 972-471-5522, Cell: 972-658-8872, leslie.russell2@verizon.net
Kathryn Groves (Leander/Austin), 810-588-6034, kathryn.a.groves@icloud.com
Joy Graydon (Mesquite), 904-303-0869, JGraydon10@hotmail.com
Education Parent Mentor
Leslie Russell (Parent) Coppell, TX, 972-658-8872, leslie.russell2@verizon.net
TSC Clinics
Austin
Dell Children’s Hospital
Director: E. Steve Roach, MD
Coordinator: Zoë Allen, BSN, RN
Clinic Ambassador: Sheryl Kubala, sheryl.kubala@gmail.com
Age Range Seen: Children and Adults*
*Adults will be seen for an initial diagnosis and ongoing care provided you have a primary care physician.
Clinic Frequency: Monthly, every second Thursday.
For information or to schedule an appointment call (512) 628-1855.
Dallas
Texas Scottish Rite Hospital for Children
Director: Steven Sparagana, MD
Coordinator: Linda Lezotte, RN
Clinic Ambassador: Tricia Bodner
Age Range Seen: Children only and must be a Texas resident with diagnosis of TSC and sponsorship by a Mason.
Clinic Frequency: First, second, third, fifth Tuesdays and fourth Thursday every month. Beginning December 19, 2019, the fourth Thursday clinic permanently changes to the third Thursday.
Out-of-State Medicaid Policy: Does not accept any.
For more information or to schedule an appointment call (214) 559-7830 or email TSCclinic@tsrh.org.
Ft. Worth
Cook Children’s Clinic for Tuberous Sclerosis Complex
Director: M. Scott Perry, MD
Coordinator: Amy Davis, BSN, RN
Age Range: Children
Clinic Frequency: First Tuesday of each month.
For more information or to schedule an appointment call Amy Davis at (682) 885-7259.
Houston
McGovern Medical School, University of Texas Health Science Center at Houston
Clinic Location: University of Texas Professional Bldg., 6410 Fannin Street, Suite 500, Houston, Texas 77030
Director: Hope Northrup, MD
Co-Director: Mary Kay Koenig, MD
Coordinator: Claire Sartwell, RN, BSN
Age Range: Children and Adults
Clinic Frequency: First and fourth Monday and third Tuesday every month.
For more information about the TSC Clinic contact Claire Sartwell, RN, BSN at (713) 500-7149. To schedule an appointment call (713) 500-6367.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Houston
Comprehensive Tuberous Sclerosis Clinic at Texas Children’s Hospital
Affiliated with Texas Children’s Hospital, Baylor College of Medicine
Director: Rohini Coorg, MD
Co-Director: Surya Prasadarao Rednam, MD, MS
Coordinator: Kari M. Vanderslice, BSN, RN
Age Range: Children
Clinic Frequency: Monthly, every third Wednesday.
For information or to schedule an appointment call Kari Vanderslice at (832) 822-5046.