Individuals & Families

Texas

Community Alliances

TS Alliance of Dallas/Ft. Worth →

TS Alliance of Houston →

TSC Connect Contacts

Adult Regional Coordinator

Jake Irby (Adult), Austin, TX, 512-586-8895, Irby.jake@gmail.com

Dependent Adult Transition Resource Coordinators

Laura Buckner (North/West), 512-232-0741, Laura.g.buckner@gmail.com

Lucy Martinez (South/East), 832-423-6989, Lucy.martinez@encompasshealth.com (Speaks Spanish)

Leslie Russell (Dallas/Ft. Worth), Home: 972-471-5522, Cell: 972-658-8872, leslie.russell2@verizon.net

Kathryn Groves (Leander/Austin), 810-588-6034, kathryn.a.groves@icloud.com

Education Parent Mentor

Leslie Russell (Parent) Coppell, TX, 972-658-8872, leslie.russell2@verizon.net

TSC Clinics

Austin
Children’s Comprehensive Care clinic at Dell Children’s Medical Center
Director: Karen C. Keough, MD (Pediatrics)
Co-Director: Deborah Briggs, MD (Adults)
Coordinator: Alice Jefferson, RN
Clinic Ambassador: Sheryl Kubala
Age Range Seen: Children
Clinic Frequency: Monday – Friday, 7:30 am – 5:00 pm
For information or to schedule an appointment for your child who is less than 18 years of age, please contact the Comprehensive Care Clinic at (512) 628-1833 to speak with the enrollment coordinator, Nohemi Ruiz.
Esta clínica cuenta con un doctor o un empleado que habla un poco de español.

Dallas
Texas Scottish Rite Hospital for Children
Director: Steven Sparagana, MD
Coordinator: Linda Lezotte, RN
Clinic Ambassador: Tricia Bodner
Age Range Seen: Children only and must be a Texas resident with diagnosis of TSC and sponsorship by a Mason.
Clinic Frequency: First, second, third, fifth Tuesdays and fourth Thursday every month.  Beginning December 19, 2019, the fourth Thursday clinic permanently changes to the third Thursday.
Out-of-State Medicaid Policy: Does not accept any.
For more information or to schedule an appointment call (214) 559-7830 or email TSCclinic@tsrh.org.

Ft. Worth
Cook Children’s Clinic for Tuberous Sclerosis Complex
Director: M. Scott Perry, MD
Coordinator: Amy Davis, BSN, RN
Age Range: Children
Clinic Frequency: First Tuesday of each month.
For more information or to schedule an appointment call  Amy Davis at (682) 885-7259.

Houston
University of Texas-Memorial Hermann TSC Center of Excellence 
Affiliated with Memorial Hermann Hospital
Children’s Memorial Hermann Hospital
The University of Texas, Houston
Clinic Location: University of Texas Professional Bldg., 6410 Fannin Street, Suite 500, Houston, Texas 77030
Director: Hope Northrup, MD
Co-Director: Mary Kay Koenig, MD
Coordinator:  Alejandro Carrillo, RN, BSN
Clinic Ambassador: Victoria Newberry, (832) 331-3561 mobile
Age Range: Children and Adults
Clinic Frequency: First and fourth Monday and third Tuesday every month.
For more information about the TSC Clinic contact Alejandro Carrillo, RN, BSN at (713) 500-7149.   To schedule an appointment call (713) 500-6367.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Houston
Comprehensive Tuberous Sclerosis Clinic at Texas Children’s Hospital 
Affiliated with Texas Children’s Hospital, Baylor College of Medicine 
Director: Rohini Coorg, MD
Co-Director: Surya Prasadarao Rednam, MD, MS
Coordinator:  Laura Cairampoma, RN, BSN
Administrative Coordinator: Truzella Benton
Clinic Ambassador: Victoria Newberry, (832) 331-3561 mobile
Age Range: Children
Clinic Frequency:  Monthly, every third Wednesday. 
For information or to schedule an appointment call Truzella Benton at (832) 822-0996.

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