TSC Connect Contacts
- Jennifer Waldron (Adult and Chair, TS Alliance of Connecticut), New London, CT, 860-235-4700, firstname.lastname@example.org
- Allyson D’Amario (Parent and Chair, TS Alliance of New England), Holliston, MA, 617-512-2139, Allyson.email@example.com
- Kathleen Kuiper (Parent), North Kingstown, RI, 401-267-9073, Kathy.Kuiper@verizon.net
Adult Regional Coordinator
Phil Tallman (Parent and Adult), Lisle, IL, 630-532-0979, Philip.firstname.lastname@example.org
Nearby TSC Clinics
The Carol and James Herscot Center for Children and Adults with Tuberous Sclerosis Complex
Director: Elizabeth Thiele, MD, PhD
Coordinator: Jan Paolini, RN, MSN, PNP
Age Range Seen: Children and Adults
Clinic Frequency: Weekly on Fridays and every other Tuesday, as well as on an as needed basis.
To schedule an appointment please call (617) 726-0241.
Multi-Disciplinary Tuberous Sclerosis Program
Boston Children’s Hospital
Director: Mustafa Sahin, MD, PhD
Coordinator: Jennifer McCrave, RN, BSN, CNRN
Age Range Seen: Children and Young Adults up to age 25 years old.
Clinic Frequency: Every other week.
Out-of-State Medicaid Policy: Accepts Maine, New Hampshire, Rhode Island and Vermont.
To schedule an appointment please call Elizabeth Beers at (617) 355-2711.
University of Pennsylvania Medical Center (HUP) and Children’s Hospital of Philadelphia (CHOP)
Director: Katherine Nathanson, MD
Co-Director: Katherine Taub, MD
Administrative Coordinators: Meredith Breen (HUP) and Chistina McGill (CHOP)
Age Range Seen: Children and Adults for general TSC care and genetics. Children under age 12 years old with neurological issues are referred to Children’s Hospital of Philadelphia (CHOP) for evaluation.
Clinic Frequency: Weekly
To schedule an appointment at HUP, call (215) 662-4740. For CHOP appointments, call (215) 590-1719.
St. Christopher’s TSC Clinic
Director: Daphne Hasbani, MD, PhD
Coordinator: To be named
Age Range Seen: Children only.
Clinic Frequency: Daily
To schedule an appointment, call Nataly Arroyo at (215) 427-3878.
Children’s Hospital of Pittsburgh TS Clinic
Director: Shelley Williams, MD
Coordinator: Jennifer Diserio, CRNP, CPNP
Age Range Seen: Infants to adults
Clinic Frequency: Monthly
To schedule an appointment, call (412) 692-5520.