Individuals & Families

Ohio

Community Alliance

TS Alliance of Ohio →

TSC Connect Contacts

*Speaks Spanish

Adult Regional Coordinator

Brooke Simsa (Adult and Parent), Findlay, OH, 567-301-7528, Brooke2330@gmail.com

Dependent Adult Transition Resource Coordinators

Jim and Nancy Weir (Parents), Dayton, OH, 937-371-7981, weirnancy@gmail.com

TSC Clinics

Akron
Akron Children’s Hospital
Director: Poonam Bhatia, MD
Co-Director: Michael Kohrman, MD
Coordinator: Tiffany Berry, LPN
Age Range Seen: New patients up to age 21 years.
Clinic Frequency: Every two months (subject to change).
For Clinic Information and to schedule an appointment call (330) 543-0588.

Cincinnati
The Tuberous Sclerosis Clinic
Founding Director: David N. Franz, MD
Director: Darcy Krueger, MD, PhD
Administrative Coordinator: Melody Gulleman
Coordinators: Cindy Tudor, CPNP and Karen Agricola, CFNP
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Out-of-state Medicaid: Accepts pending pre-authorization from the Medicaid provider.  There are financial assistance programs for those living in Indiana: Dearborn county; Kentucky: Boone, Campbell and Kenton counties; and Ohio: Butler, Clermont, Hamilton and Warren counties.  Ohio residents may qualify for the H-Cap program, which is for low income and based on federal poverty guidelines.  For further questions regarding these programs contact Financial Services at (513) 636-0201.
To schedule an appointment or for information, contact Melody Gulleman at (513) 636-4222 or email TSclinic@cchmc.org
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Cleveland
TSC Care at CCF (The Cleveland Clinic)
Director: Ajay Gupta, MD, FAAP
Coordinator: Paula Klima, RN
Age Range: Children and young adults up to age 21 year old.
Clinic Frequency: Weekly on Wednesday. Scheduling is flexible to meet patients’ needs whenever possible.
For more information or to schedule an appointment, email tsc_care@ccf.org or call 216-445-0601.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Cleveland
Rainbow Babies and Children’s Hospital at University Hospitals Cleveland Medical Center
Director: Asim Shahid, MD
Co-Director: Deborah Rukin Gold, MD
Coordinator: Adina Chirla, BSN, RN
Age Range Seen: Children and Adults.
Clinic Frequency: Every four to six months.
For Clinic Information and to schedule an appointment call (216) 286-6644.

Columbus
Nationwide Children’s TSC Clinic
Director: Monica P. Islam, MD
Coordinator: Gada McMahen, RN, CPN
Clinic Ambassador: Lola Centeno, hseonelm@aol.com
Age Range: Children
Clinic Frequency: First and third Thursday of each month.  Third Thursday is with Geneticist.
For more information or to schedule an appointment, contact the clinic at (614) 722-4625; (614) 722-4633 (fax).