Individuals & Families

North Carolina

Community Alliance

TS Alliance of North Carolina →

TSC Connect Contacts

Adult Regional Coordinator

Kathy Henkel (Parent and Adult), Waynesboro, VA, 540-949-0582, uneakmom@gmail.com

Dependent Adult Transition Resource Coordinator

Kathleen Valenti (Parent of an Adult), Waynesville, NC, 609-870-6609, khalpin2002@gmail.com

Education Parent Mentors

NC East: Nancy Blankenship (Parent), Clayton, NC, 804-436-2606, nancyblankenship@icloud.com

NC West: Amy Quintana (Parent), Summerfield, NC, 336-681-8114, Amy.Quintana@me.com

TSC Clinics

Charlotte
Levine Children’s Hospital, Carolinas Healthcare System
Director: Katherine Van Poppel, MD
Co-Director: Chad Jacobsen, MD
Coordinator: Kari Privette, RN
TSC Clinic Ambassador: Heather Morris, (704) 906-1280, Heather.morris@atriumhealth.org
Age Range Seen: New patients up to age 25 years.
Clinic Frequency: Every other month as a multidisciplinary clinic; patients are seen in the provider’s regular clinics when they need to be seen more frequently.
For Clinic Information and to schedule an appointment call (704) 403-2786.

Durham
Duke Medical Center
Director: Klaus Georg Werner, MD, PhD
Co-Director: David Van Mater, MD, PhD
Coordinator: Gina Stewart BSN, RN
Age Range Seen: Children and Adults.
Clinic Frequency: Monthly, every third week.
For Clinic Information and to schedule an appointment call (919) 668-4835.

Winston-Salem
Wake Forest Baptist Medical Center Tuberous Sclerosis Clinic
Director: Mary T. Silvia, MD
Administrative Coordinator: Mary Jo Shirley
Age Range Seen: Children and Adults.
Clinic Frequency: Monthly, first Thursday, subject to change.
To schedule an appointment, call (336) 716-4101.