New York
Community Alliance
TS Alliance of New York & New Jersey →
TSC Connect Contacts
- Laura Marks (Parent and Community Alliance Co-Chair), Forest Hills, NY, 646-883-4TSC (4872), TSCMamaNYC@gmail.com
- Cindy Hammerquist (Parent), Huntington, NY, 917-755-4582, cindlequist@gmail.com
- Elizabeth Buchsbaum (Parent), New York, NY, 212-831-8778, esob89@aol.com
- Andrew and Gail Gershon (Parents), New York, NY, 212-222-6102, gail_gershon@gap.com
- Jeanne Sergio (Young Adult), Monroe, NY, 845-222-4494, jeanne.sergio@gmail.com
- Bridgett Langstaff (Parent), Baldwinsville, NY, 315-935-6465, bclangstaff@mac.com
- Tiana Morano (Parent), Ronkonkoma, NY, 631-750-6216, moonmovingsoul@aol.com
- David Stegemann (Young Adult), Manlius, NY, 315-663-7193, stegemanndavid@yahoo.com
- Naomi Naiztat (Parent), Brooklyn, NY, 917-523-0427, nnaiztat@gmail.com
Adult Regional Coordinator
Scott Moskowitz (Adult), NY, 516-535-9105, scotttsc01@gmail.com
Education Parent Mentor
Education Parent Mentors
- Laura Marks (Parent), Forest Hills, NY, 646-883-4TSC (4872), TSCMamaNYC@gmail.com
- Blair Cady (Parent), Elmira, NY, 607-425-1454, Blairc99@yahoo.com
TSC Clinics
Bronx
Children’s Hospital at Montefiore (CHAM) Tuberous Sclerosis Center
Director: Jules C. Beal, MD
Administrative Coordinator: Erica Sierra
Physician Assistant: Sheri Escalante, PA-C
Age Range Seen: Children and young adults up to age 30 years.
Clinic Frequency: Monthly, the first Tuesday morning of every month.
To schedule an appointment, call (718) 920-4378.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
New York City
New York Presbyterian/Columbia University Medical Center for Tuberous Sclerosis
Director: Cigdem I. Akman, MD
Co-Director: Elena Gonzalez, PNP, MSN
Coordinator: Elena Gonzalez, PNP, MSN
Age Range Seen: Children and Adults.
Clinic Frequency: Appointments are scheduled as needed.
To schedule an appointment, call the TSC Center at (212) 342-1036.
New York City
TS Center at Mount Sinai Health System
Director: Steven Wolf, MD
Co-Director: Patricia McGoldrick, NP, MSN, MPA
Age Range Seen: Children and Adults
Clinic Frequency: Monday – Friday
To schedule an appointment call Toni Kavanagh, RN, MSHA, MBA, CNRN at (212) 241-2401. Due to a high volume of calls, your call will rollover to an answering service after 4 rings.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
- Phillips Ambulatory Care Center at Mount Sinai Beth Israel – Daily office hours.
- Developmental Disabilities Center at Mount Sinai West – Medical home model with daily office hours.
- Comprehensive Pediatric Epilepsy Center-Mount Sinai Kravis Children’s Hospital, Mount Sinai West and Mount Sinai – 7 day per week monitoring capability with inpatient service.
- Hartsdale New York Pediatric Neurology/Epilepsy Office – Monday-Thursday Neurology coverage and Tuesday – Saturday EEG available.
New York City
The TS Center at New York University Langone Medical Center
(The TSC clinic at New York University (NYU) operates out of the NYU Comprehensive Epilepsy Center)
Director: Josiane LaJoie, MD
Coordinator: Kimberly Parker Menzer, AGNP-BC
Age Range Seen: Children and Adults
Clinic Frequency: Daily as Needed
For information about the TSC Clinic contact Kim Menzer at (646) 558-0808. To schedule an appointment contact Samantha Stanhope at (646) 558-0808.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.