Missouri
Community Alliances
TS Alliance of Greater Kansas City →
TS Alliance of St. Louis and Southern Illinois →
TSC Connect Contacts
- Amy Dublinske (Parent and Chair, TS Alliance of Greater Kansas City), Lees Summit, MO, 816-537-8854, dublinske@sbcglobal.net
- Gwen Montaigne (Parent and Chair, TS Alliance of St. Louis/Southern IL), St. Charles, MO, 314-309-7921, tawanda1951@yahoo.com
- John Wendling (Parent), St. Louis, MO, 314-546-8627, jwendling300@gmail.com
- Leigh Ann Eberhart (Parent), Wentzville, MO, 636-332-1568, eberhartfamily@aol.com
- Mary & Dave Henke (Parent), Fenton, MO, 636-225-8996, Dhenke1965@yahoo.com
- Debbie Fischer (Grandparent), Bradleyville, MO, 417-251-1442, debbiefischer2@gmail.com
- Jackie Grenia (Parent), St. Louis, MO, 314-255-5990, jackiegrenia@yahoo.com
Education Parent Mentor
Rene Friedel, 618-654-6844, rfriedel@charter.net
Adult Regional Coordinator
Jake Irby (Adult), Austin, TX, 512-586-8895, Irby.jake@gmail.com
TSC Clinics
Kansas City
Tuberous Sclerosis Clinic at Children’s Mercy Hospital
Director: Mohammed Ilyas, MD
Co-Director: Laurel Willig, MD
Coordinator: Megan Gustafson, MSN, RN, CPNP
Clinic Ambassadors: Amy Dublinske, dublinske@sbcglobal.net; Laurisa Ballew, laurisa.ballew@gmail.com
Age Range Seen: New patients up to age 21 years.
Clinic Frequency: Monthly, every fourth Thursday (subject to change in July 2019).
For Clinic Information call (913) 696-8254 and to schedule an appointment call ( 913) 696-8950 (ext. 88032).
St. Louis
Cardinal Glennon Children’s Hospital, Saint Louis University School of Medicine
Director: Pending TS Alliance Board Approval
Co-Director: L. Richard Feldenberg, MD
Coordinators: Julie Engel, RN
Age Range Seen: New patients up to age 20 years.
Clinic Frequency: Monthly, every second Thursday.
For Clinic Information and to schedule an appointment call (314) 268-2737.
St. Louis
Washington University Tuberous Sclerosis Clinic
Director: Michael Wong, MD, PhD
Coordinator: Ashley Fasciola, RN, BSN
Clinic Ambassador: Rene Friedel, rfriedel@charter.net
Age Range Seen: Children and adults
Clinic Frequency: Weekly every Wednesday morning.
Out-of-State Medicaid Policy: Accepts Illinois only.
For information and to schedule an appointment call (314) 454-4352.