Individuals & Families

Michigan

Community Alliance

TS Alliance of Michigan →

TSC Connect Contacts

Adult Regional Coordinator

Brooke Simsa (Adult and Parent), Findlay, OH, 567-301-7528, Brooke2330@gmail.com

Dependent Adult Transition Resource Coordinator

Kathy Groves (Parent of an Adult), Brighton, MI, 810-588-6034, kathryn.a.groves@icloud.com

TSC Clinics

Detroit
Children’s Hospital of Michigan Tuberous Sclerosis Clinic
Director: Aimee Luat, MD
Co-Director: Melissa Gregory, MD
Coordinator: Jamie MacDougall, RN, BSN, CPN
Age Range Seen: Children and young adults up to age 21 years old.
Clinic Ambassador: Treasa Bolger-Dunlap, Mtbolger@comcast.net
Clinic Frequency: One half-day every second Monday of the month.
Out-of-State Medicaid Policy: Accepts any that will reimburse.
For information and to schedule an appointment call Jamie at (313) 832-9610.

Grand Rapids
TSC Clinic at Helen DeVos Children’s Hospital
Director: Steven DeRoos, MD
Coordinator: Lauren Frans, RN
Clinic Ambassador: Mary Jo Cardona, (352) 286-9481, mjcardona11@gmail.com
Age Range Seen: Children and adults
Clinic Frequency:  A joint clinic with adult neurology and urology is held every second Thursday of each month.
To schedule an appointment call the HDVCH Welcome Center at 616-267-2500.   For Urgent Appointments ask to speak to Lauren Frans, RN.

Royal Oak
Beaumont Health System Comprehensive TSC Clinic
Director: Danielle A. Nolan, MD
Co-Director: Anne Marie Michon, MSN, RN, CPNP-PC
Coordinator: Emily Salatka, BSN, RN
Clinic Ambassador: Carly Kaye, carly.e.kaye@gmail.com
Age Range Seen: Children and Adults
Clinic Frequency: First and third Friday every month.
For information call Emily Salatka at (248) 551-2275 and to schedule an appointment call (248) 551-3302.