Michigan
Community Alliance
TSC Connect Contacts
- Carly Kaye (Parent and Community Alliance Chair), Pinckney, MI, 407-497-0788, carly.e.kaye@gmail.com
- Treasa Bolger-Dunlap (Parent), DeWitt, MI, 517-749-1071, mtbolger@comcast.net
- Janeen Bertolina (Parent), Portage, MI, 520-577-9750, Bertolina6@gmail.com
- Donna & Ed Bletch (Parents), Fraser, MI, Home: 586-294-8725, Cell: 586-668-2822, edblet@yahoo.com
- Kim Christie (Parent), Clarkston, MI, 248-625-7524, kimchristie@comcast.net
- Mike & Beth DeWyse (Parents), Pinconning, MI, 989-879-4867, medewyse@netscape.net
- Kimberly Hyde (Parent), Grandville, MI, 616-261-2522, kehyde@comcast.net
- Sandra Deline (Parent), Ann Arbor, MI, Home: 743-369-2829, Cell: 743-645-7287, Sandra.deline@yahoo.com
- Kathy Groves (Parent), Brighton, MI, 810-588-6034, kathryn.a.groves@icloud.com
- Stephanie Brown (Parent), Portland, MI, 517-243-3104, sbrown@ioniaisd.org
- Gwen Pryor (Adult), Kalamazoo, MI, Home: 269-388-5857, Cell: 269-217-6853, gcpryor@gmail.com
Adult Regional Coordinator
Brooke Simsa (Adult and Parent), Findlay, OH, 567-301-7528, Brooke2330@gmail.com
Dependent Adult Transition Resource Coordinator
Kathy Groves (Parent of an Adult), Brighton, MI, 810-588-6034, kathryn.a.groves@icloud.com
TSC Clinics
Detroit
Children’s Hospital of Michigan Tuberous Sclerosis Clinic
Director: Aimee Luat, MD
Co-Director: Melissa Gregory, MD
Coordinator: Jamie MacDougall, RN, BSN, CPN
Age Range Seen: Children and young adults up to age 21 years old.
Clinic Ambassador: Treasa Bolger-Dunlap, Mtbolger@comcast.net
Clinic Frequency: One half-day every second Monday of the month.
Out-of-State Medicaid Policy: Accepts any that will reimburse.
For information and to schedule an appointment call Jamie at (313) 832-9610.
Grand Rapids
TSC Clinic at Helen DeVos Children’s Hospital
Director: Steven DeRoos, MD
Coordinator: Lauren Frans, RN
Clinic Ambassador: Mary Jo Cardona, (352) 286-9481, mjcardona11@gmail.com
Age Range Seen: Children and adults
Clinic Frequency: A joint clinic with adult neurology and urology is held every second Thursday of each month.
To schedule an appointment call the HDVCH Welcome Center at 616-267-2500. For Urgent Appointments ask to speak to Lauren Frans, RN.
Royal Oak
Beaumont Health System Comprehensive TSC Clinic
Director: Danielle A. Nolan, MD
Co-Director: Anne Marie Michon, MSN, RN, CPNP-PC
Coordinator: Emily Salatka, BSN, RN
Clinic Ambassador: Carly Kaye, carly.e.kaye@gmail.com
Age Range Seen: Children and Adults
Clinic Frequency: First and third Friday every month.
For information call Emily Salatka at (248) 551-2275 and to schedule an appointment call Dara Bell at (248) 551-7445.