Individuals & Families


Community Alliance

TS Alliance of New England →

TSC Connect Contacts

Adult Regional Coordinator

Phil Tallman (Parent and Adult), Lisle, IL, 630-532-0979, Philip.tallman@gmail.com

Dependent Adult Transition Resource Coordinator

Jill Woodworth (Parent), Rutland, MA, 617-304-8518, pjlacy6@gmail.com

TSC Clinics

The Herscot Center for Tuberous Sclerosis Complex at Massachusetts General Hospital
Director: Elizabeth Thiele, MD, PhD
Coordinator: Jan Paolini, RN, MSN, PNP
Age Range Seen: Children and Adults
Clinic Frequency: Weekly on Fridays and every other Tuesday, as well as on an as needed basis.
To schedule an appointment please call (617) 726-0241.

Multi-Disciplinary Tuberous Sclerosis Program
Boston Children’s Hospital
Director: Mustafa Sahin, MD, PhD
Coordinator: Jennifer McCrave, RN, BSN, CNRN
Age Range Seen: Children and Young Adults up to age 25 years old.
Clinic Frequency: Every other week.
Out-of-State Medicaid Policy: Accepts Maine, New Hampshire, Rhode Island and Vermont.
To schedule an appointment please call Elizabeth Beers at (617) 355-2711.