Individuals & Families


Community Alliance

TS Alliance of New England →

TSC Connect Contacts

Adult Regional Coordinator

Scott Moskowitz (Adult), NY, 516-535-9105,

Dependent Adult Transition Resource Coordinator

Jill Woodworth (Parent), Rutland, MA, 617-304-8518,

TSC Clinics

The Carol and James Herscot Center for Children and Adults with Tuberous Sclerosis Complex 
Director: Elizabeth Thiele, MD, PhD
Coordinator: Jan Paolini, RN, MSN, PNP
Age Range Seen: Children and Adults
Clinic Frequency: Weekly on Fridays and every other Tuesday, as well as on an as needed basis.
To schedule an appointment please call (617) 726-0241.

Multi-Disciplinary Tuberous Sclerosis Program
Boston Children’s Hospital
Director: Mustafa Sahin, MD, PhD
Coordinator: Jennifer McCrave, RN, BSN, CNRN
Age Range Seen: Children and Young Adults up to age 25 years old.
Clinic Frequency: Every other week.
Out-of-State Medicaid Policy: Accepts Maine, New Hampshire, Rhode Island and Vermont.
To schedule an appointment please call Elizabeth Beers at (617) 355-2711.