Individuals & Families


Community Alliance

TS Alliance of MARYLAND →

TSC Connect Contacts

Adult Regional Coordinator

Kathy Henkel (Adult and Parent of an Adult), Waynesboro, VA, 540-949-0582,

TSC Clinic

Tuberous Sclerosis Clinic at Kennedy Krieger Institute
Director: Jacqueline Harris, MD
Administrative Coordinator: Jennifer Johnson
TSC Clinic Ambassador: Jocelyn Cenna,
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Out-of-State Medicaid Policy: Accepts Delaware, District of Columbia, New Jersey
For more information contact Jennifer Johnson at 443-923-2746.  For new patient appointment the number is 443-923-9400 and for follow up appointment 443-923-9540.

University of Maryland
Director: Peter B. Crino, MD, PhD
Coordinator: Joyce Matthews, MS, RN, CNRN
Age Range Seen: New patients 12 years and older.
Clinic Frequency: Weekly.
For Clinic Information call (410) 328-2172 and to schedule an appointment call (410) 328-6266.

Washington, DC and Fairfax, VA
Tuberous Sclerosis Clinic at Children’s National
Director: William McClintock, MD
Coordinator:  Nancy Elling, RN, BSN, CPN
Age Range Seen: Children and Adults.
Clinic Frequency: Weekly on Thursday at Children’s National Medical Center in Washington DC and monthly on the second Monday at the Regional Outpatient Center in Fairfax, VA.
For information about the TSC Clinic contact Nancy J. Elling, RN, BSN, CPN at (571) 405-5961. To schedule an appointment, call the Neurology appointment line at (202) 476-3611