Individuals & Families

Maryland

Community Alliance

TS Alliance of MARYLAND →

TSC Connect Contacts

Adult Regional Coordinator

Kathy Henkel (Adult and Parent of an Adult), Waynesboro, VA, 540-949-0582, uneakmom@gmail.com

TSC Clinic

Baltimore
Tuberous Sclerosis Clinic at Kennedy Krieger Institute
Director: Jacqueline Harris, MD
Administrative Coordinator: Jennifer Johnson
TSC Clinic Ambassador: Jocelyn Cenna, portvue@comcast.net
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Out-of-State Medicaid Policy: Accepts Delaware, District of Columbia, New Jersey
For more information contact Jennifer Johnson at 443-923-2746.  For new patient appointment the number is 443-923-9400 and for follow up appointment 443-923-9540.

Baltimore
University of Maryland
Director: Peter B. Crino, MD, PhD
Coordinator: Joyce Matthews, RN
Age Range Seen: New patients 12 years and older.
Clinic Frequency: Weekly.
For Clinic Information call (410) 328-2172 and to schedule an appointment call (410) 328-6266.

Washington, DC and Fairfax, VA
Tuberous Sclerosis Program at Children’s National Health System
Director: William McClintock, MD
Co-Director: Amy Kao, MD
Coordinator:  Nancy Elling, RN, BSN, CPN
Age Range Seen: Children and Adults
Clinic Frequency: Monthly, the second Monday at the Regional Outpatient Center in Fairfax, VA and the third Thursday at Children’s National Medical Center in Washington, DC.
For information about the TSC Clinic contact Nancy J. Elling, RN, BSN, CPN at (571) 405-5961. To schedule an appointment, call the Neurology appointment line at (202) 476-3611.