Individuals & Families

Indiana

Community Alliance

TS Alliance of Indiana →

TSC Connect Contacts

Adult Regional Coordinator

Brooke Simsa (Adult and Parent), Findlay, OH, 567-301-7528, brooke2330@gmail.com

Nearby TSC Clinics

ILLINOIS

Chicago
University of Chicago Medical Center
Director: James H. Tonsgard, MD
Co-Director: Patti Ogden, APN, FNP, NP-C
Coordinator: Debbie Ruckman, RN, BSN, CPN, Telephone: 773-834-1927
Age Range Seen: Children and Adults
Clinic Frequency: One Friday afternoon per month and as needed weekly at main campus or off site locations.
Out-of-state Medicaid: Process to get approval may take several weeks. Contact clinic for details.
For more information about the clinic or to schedule an appointment contact Debbie Ruckman at (773) 834-1927.  
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Chicago  
Ann & Robert H. Lurie Children’s Hospital of Chicago
Director: Priyamvada Tatachar, MD
Co-Director: Jacqueline Wolak, MSN, BSN, BS, APN, RN, FNP-C
Administrative Coordinator: Clara Samaniego
Age Range Seen: Children and young adults up to age 21 years old.
Clinic Frequency: Twice monthly on selected Tuesday afternoons.
To schedule an appointment call (312) 227-3540.

Chicago
University of Illinois at Chicago
Director: Akira Yoshii, MD, PhD
Co-Director: Saba Ahmad, MD
Coordinator: Joyce Masterton, ANP
Age Range Seen: Children and Adults.
Clinic Frequency: Monthly, every first Wednesday morning (subject to change).
For Clinic Information and to schedule an appointment call (312) 996-7865.

OHIO

Cincinnati
The Tuberous Sclerosis Clinic
Founding Director: David N. Franz, MD
Director: Darcy Krueger, MD, PhD
Administrative Coordinator: Melody Gulleman
Coordinators: Cindy Tudor, CPNP and Karen Agricola, CFNP
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Out-of-state Medicaid: Accepts pending pre-authorization from the Medicaid provider.  There are financial assistance programs for those living in Indiana: Dearborn county; Kentucky: Boone, Campbell and Kenton counties; and Ohio: Butler, Clermont, Hamilton and Warren counties.  Ohio residents may qualify for the H-Cap program, which is for low income and based on federal poverty guidelines.  For further questions regarding these programs, contact Financial Services at (513) 636-0201.
To schedule an appointment or for information, contact Melody Gulleman at (513) 636-4222 or email TSclinic@cchmc.org
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Cleveland
TSC Care at CCF (The Cleveland Clinic)
Director: Ajay Gupta, MD, FAAP
Coordinator: Paula Klima, RN
Age Range: Children and young adults up to age 21 year old.
Clinic Frequency: Weekly on Wednesday. Scheduling is flexible to meet patients’ needs whenever possible.
For more information or to schedule an appointment, email tsc_care@ccf.org or call 216-445-0601.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Columbus
Nationwide Children’s TSC Clinic
Director: E Steve Roach, MD
Co-Director: Monica P. Islam, MD
Coordinator: Joey Burns, RN, BSN, CNRN
Clinic Ambassador: Lola Centeno, ohiotsc@yahoo.com
Age Range: Children and Adults
Clinic Frequency: First and third Thursday of each month.  Third Thursday is with Geneticist.
For more information or to schedule an appointment, contact Patricia Jo Burns, RN, BSN, CNRN at (614) 722-4625; (614) 722-4633 (fax).