Individuals & Families


Community Alliances

TS Alliance of Greater Chicago →


TSC Connect Contacts

Education Parent Mentor

Rene Friedel (Parent), 618-654-6844, rfriedel@charter.net

Adult Regional Coordinators

Brooke Simsa (Adult and Parent), Findlay, OH, 567-301-7528, Brooke2330@gmail.com
Philip Tallman (Adult), Lisle, IL, 630-532-0979, Philip.tallman@gmail.com

Dependent Adult Transition Resource Coordinator

Paula Krischel (Adult and Parent), Dwight, IL, 815-584-2421, krischelp5@gmail.com

TSC Clinics

University of Chicago Medical Center
Director: James H. Tonsgard, MD
Coordinator: Debbie Ruckman, RN, BSN, CPN, Telephone: 773-834-1927
Age Range Seen: Children and Adults
Clinic Frequency: One Friday afternoon per month and as needed weekly at main campus or off site locations.
Out-of-state Medicaid: Process to get approval may take several weeks. Contact clinic for details.
For more information about the clinic or to schedule an appointment contact Debbie Ruckman at (773) 834-1927.  
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Multidisciplinary Tuberous Sclerosis Clinic at Ann & Robert H. Lurie Children’s Hospital of Chicago
Director: Priyamvada Tatachar, MD
Co-Director: Joyce Y. Wu, MD
Administrative Coordinator: Clara Samaniego
Coordinator: Michelle Vergara, RN
Age Range Seen: Children and young adults up to age 21 years old.
Clinic Frequency: Twice monthly on selected Tuesday afternoons.
To schedule an appointment call (312) 227-3540.

TSC Clinic at University of Illinois at Chicago
Director: Akira Yoshii, MD, PhD
Co-Director: Saba Ahmad, MD
Coordinator: Joyce Masterton, ANP
Age Range Seen: Children and Adults*.
Clinic Frequency: Monthly, every first Wednesday morning (subject to change).
For clinic information and to schedule an appointment, call (312) 996-7865. To avoid confusion with scheduling please specify you or your child has TSC. For children with TSC, schedule an appointment with Dr. Yoshii or Dr. Ahmad.  *For adults with TSC, schedule an appointment with Dr. Jeffrey Loeb.