Improving Partnerships and Lives Grant (IPaLG)

The Tuberous Sclerosis Alliance (TS Alliance) is dedicated to finding a cure for tuberous sclerosis complex, while improving the lives of those affected.

Tuberous sclerosis complex (TSC) is a genetic disorder that causes non-malignant tumors to form in vital organs, such as the skin, kidneys, brain, heart, eyes, lungs and other organs.  Individuals with TSC may be initially diagnosed because of involvement in any or all of these organs, often depending on the age at which a person received the diagnosis. The severity of TSC can range from mild to severe, even within the same family if more than one person has TSC. TSC is also the leading genetic cause of autism and epilepsy.

It is estimated TSC affects 1 in 6,000 live births in the United States.  Nearly 1 million people worldwide have TSC, with approximately 50,000 in the United States. Moreover, TSC shows no gender bias and occurs in all races and ethnic groups.

What is a TS Alliance Improving Partnerships and Lives Grant?

The TS Alliance Improving Partnerships and Improving Lives Grant (IPaLG) is designed to develop new partnerships and provide much-needed resources to families/individuals living with TSC. Funding decisions are made through a competitive application process.  Our IPaLG is invested in high-performing nonprofit organizations that provide programs and services aligned with improving lives for children and adults with disabilities with a priority for individuals living with TSC. Our four strategic priority areas of Academic Support for Students/Families Within the School System, Skills and Advocacy Support for Individuals/Families, Social and Functional Skills Opportunities, and Basic Needs Support.

Who can apply for an IPaLG?

High-performing nonprofit organizations (with a priority on new partnerships) that provide programs and services aligned with improving lives for children and adults with disabilities (with a priority for individuals living with TSC) may apply.

What is the process to apply?

To apply for this grant, please complete the online application form below.  All applications are due by Thursday, March 13, 2020 at 5 pm Eastern Time.  All IPaLG applications will be reviewed by a committee of professionals, parents and service providers knowledgeable in TSC. Grants will be awarded for grant year 2020. Grants will range from $500 up to maximum of $5,000.

To connect with your local Community Alliance for a letter of support and collaboration go here. You will be able to upload this letter or other supporting documents at the end of the online application below.

What are IPaLG’s priorities?

Academic Support for Students/Families Within the School System (School Age)

Academic and social supports for students and families; transition support for post-secondary learning opportunities; TSC-Associated Neuropsychiatric Disorders (TAND) education/training within schools; post-secondary exploration and support; family support and engagement in education.

Skills and Advocacy Support for Individuals/Families (All Ages)

Training opportunities for individuals/families in the areas of educational rights, disability specific information, post-secondary opportunities, state and local resources for dependent and independent young adults. Examples: conferences and training programs.

Social and Functional Skills Opportunities (Transition Age)

Providing opportunities for individuals with disabilities to interact in the community with non-disabled peers in natural environments; job exploration and support within the community; recreational opportunities with non-disabled peers (such as camps, swim lessons, community events, job skills training).

Basic Needs Support (All Ages)

Emergency and basic needs support for individuals and families, including clothing, food, shelter, rent, utility assistance; access to prescription assistance, primary medical, dental, vision, mental health care; transportation, hotel expense, food expense to medical appointments.

Online IPaLG Application

Please Note: All questions below require an answer before submission.  If you have any questions, please contact Dena Hook, Vice President of Support Services, at 301-562-9890 or dhook@tsalliance.org.

IPaLG Application Form
Does your organization have a 501(c)3 status? *
Which category does your proposal fall under? *
What age groups would benefit from your proposal? *
Upload your Letters of Support or other documents here. *
Maximum upload size: 52.43MB