Volunteer Opportunities

Champion Our Cause: Join the TS Alliance Volunteer Movement

“The smallest act of kindness is worth more than than the grandest intention.” Oscar Wilde

The Tuberous Sclerosis Alliance is seeking volunteers to serve as champions for our cause. We need your help to facilitate local connections for those affected by TSC, raise revenue and increase awareness while supporting the mission of our organization.

There are numerous ways to participate as a volunteer at the TS Alliance with a position to fit anyone who is interested in being a part of our team. Click on the positions below to learn more about each opportunity and apply for the position you decide is best-suited for you.

Volunteers are needed for the following positions:

We are currently accepting applications for the Junior Leader Program. Click here for the program description and application.

The TS Alliance will support your efforts by providing materials, resources and guidance. Become a champion and join our national network of local connections to better serve all those affected by TSC.

Volunteers and Community Alliance of the Year Recognition

The TS Alliance thrives on the service of selfless individuals across the country who give of their time, talent, and resources to help us achieve our mission to find a cure for TSC and improve the lives of those affected. Without them, we would not be where we are today. They have propelled our organization to levels once thought impossible — from the original four volunteer mothers who started the organization in 1974 to nearly 2,000 individuals championing our cause each year today!

Over the years, the TS Alliance has honored multiple individuals as volunteers of the year at the annual Volunteer Appreciation Dinner in Washington, DC. These are people who have made a significant impact in their local TSC communities, as well as the national organization. For a complete list of past winners by year, click here.

In addition, as we strive to acknowledge the impact of our volunteer branches, we have awarded 12 Community Alliance of the Year awards, now named the Dreamer Award. The Community Alliances that have received these awards have ensured their local TSC communities are heard, supported, and united. For a complete list of Community Alliance winners by year, click here.

Keith Hall Distinguished Leadership Award

In honor of Keith Hall’s legacy, the TS Alliance created the Keith Hall Distinguished Leadership Award. The annual recipient of this award will be an adult with TSC whose efforts mirror that of our most passionate advocates. For a complete list of winners by year, click here.

2019 Nominations

We are now accepting nominations for the 2019 Volunteer of the Year and Dreamer Awards!

The TS Alliance will honor up to four individuals and one Community Alliance for their outstanding dedication and commitment to the organization during its annual Volunteer Appreciation Dinner on March 5, 2020. It gives us the opportunity to recognize those volunteers who stand out for making a significant impact in their local communities.

Volunteer of the Year Nomination Process

Anyone can nominate a person for Volunteer of the Year who, in their opinion, has been an exceptional contributor to his/her local TSC community and the national TS Alliance organization. Past Volunteer of the Year recipients are not eligible.  Click here to nominate.

Dreamer Award Information

Anyone can nominate a Community Alliance that, in their opinion, has demonstrated exceptional community and organizational commitment with emphasis of contributions within the last 12 months. The Community Alliance of the Year award was renamed the Dreamer Award in 2016 in honor of Dee Triemer.  Past Community Alliances of the Year recipients are not eligible.  Click here to nominate.

The deadline for all nominations is January 7, 2020.

For more information please contact Shelly Meitzler at smeitzler@tsalliance.org or 800-225-6872 x232.

Keith Hall Distinguished Leadership Award

Ten years ago, the TS Alliance launched an initiative with the specific goal to make every adult with TSC feel welcome and valued in the TSC community. This initiative has grown to incorporate various volunteer leadership positions with individuals dedicated to supporting other adults with TSC as well as dependent adults and their caregivers.

The late Keith Hall was an adult with TSC who led in the development of this initiative. He gave selflessly of his time to serve on the TS Alliance Board of Directors, Adult Task Force, and as a spokesperson for our adult efforts. In addition, he took his passion and advocacy for all individuals and families affected by TSC and channeled it into his local TSC community through the Step Forward to Cure TSC walk, community gatherings and educational meetings, and the annual March on Capitol Hill.

In honor of Keith’s legacy, the TS Alliance created the Keith Hall Distinguished Leadership Award. The annual recipient of this award will be an adult with TSC whose efforts mirror that of our most passionate advocates.

Required Criteria: Adult with TSC.  Click here to nominate.

The deadline for all nomination forms is January 7, 2020.

For more information please contact Dena Hook at dhook@tsalliance.org or 800-225-6872.