TS Alliance of Wisconsin

EST. 2005

Click here for a description of our Community Alliance program.

The TS Alliance of Wisconsin is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TS Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.

Volunteer Leadership

Chair

kristin-degueme-wi
Name: Kristin DeGueme
City, State: West Bend, WI
Phone: 262-707-3634
Email:  Kristin.DeGueme@gmail.com
Other volunteer positions held in addition to Chair: Step Forward to Cure TSC Walk Chair
Short Bio and connection to TSC: Between my husband, Steve, and myself we have 4 kids – Morgan, Fisher, Elias,and Louella.  We have a swimmer, a boy scout, a someday princess, and a traffic sign expert.  Our traffic sign expert, Fisher, has TSC. We live just North of Milwaukee Wisconsin with our dog Maggie, our cat Mia, and our giant goldfish Morris.

Vice Chair

This position is currently open. If you are interested in the Vice Chair position, please click here for a position description and/or to apply.

Step Forward to Cure TSC Walk Chair

Kristin DeGueme – See information above.

Regional Leadership

Adult Regional Coordinator

Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.

Adult Regional Coordinator, Region 3

States served: ND, SD, NE, MN, IA, WI, CO
seth-frittsName: Seth Fritts
City, State: Arvada, CO
Phone: (917) 324-6708
Email: seth.fritts@yahoo.com
Other volunteer positions held in addition to Adult Regional Coordinator: None
Connection to TSC: Adult with TSC

Dependent Adult Transition Resource Coordinator

Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver.  The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.

Dependent Adult Transition Resource Coordinator, Wisconsin

Name: Lori Denzine
City, State: Menomonie, WI
Phone: (715) 556-8756
Email: sportie883@hotmail.com
Other volunteer positions held in addition to Dependent Adult Transition Resource Coordinator: None
Connection to TSC: Parent of an Adult

Find a Local TSC Clinic

To find the TSC Clinic nearest to you, visit the TSC Clinic page.

Upcoming Events

Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.

Don’t Miss Any Updates!

Click here to join the mailing list for the TS Alliance of Wisconsin and be notified of all upcoming events.

You can also visit us on Facebook to receive the latest Community Alliance updates!

If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.