TS Alliance of Tennessee

EST. 2006

Click here for a description of our Community Alliance program.

The TS Alliance of Tennessee is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TS Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.

Volunteer Leadership

Co-Chair

Kelly VigilName: Kelly Vigil
City, State: Gallatin, TN
Phone: 615-708-4288
Email: tsalliancemidtn@yahoo.com
Other volunteer positions held in addition to Chair: None
Short Bio and connection to TSC: I am a mother of 2 girls and my youngest is a spontaneous mutation of TSC2. As most of you, we deal with the everyday struggles of behavior, therapies, and everything other quirks TSC throws at us.  Please reach out to me in any way and I will be happy to assist with anything my fellow Tennesseans need. 

Co-Chair

Name: Sheila Dodson
City, State: Nashville, TN
Phone: 501-786-2338
Email: sdconsulting07@gmail.com
Short Bio and connection to TSC: I come from a small town in Central Arkansas and have a passion for helping others.  As a mother of six biological and two inherited children, I first became aware of tuberous sclerosis complex (TSC) when my daughter became ill in August 2013.  Through my work with the TS Alliance, I helped raise greater awareness of TSC throughout the state of Arkansas and hope to continue these efforts in the state of Tennessee.

Vice Chair

This position is currently open. If you are interested in the Vice Chair position, please click here for a position description and/or to apply.

Step Forward to Cure TSC Walk Chair

This position is currently open. If you are interested in the Walk Chair position, please click here for a position description and/or to apply.

Regional Leadership

Adult Regional Coordinator

Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.

Adult Regional Coordinator, Region 6

States served: KY, TN, MS, AL, GA, FL

alabama-mark-martinName: Mark Martin
City, State: Murfreesboro, TN
Phone: 860-794-9502
Email: markamartin2002@yahoo.com
Other volunteer positions held in addition to Adult Regional Coordinator:Clinic Ambassador
Connection to TSC: Adult with TSC, Parent of child with TSC

Dependent Adult Transition Resource Coordinator

Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver.  The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.

This position is currently open, but if you need assistance, you can reach out to Mark Martin (information above). If you are interested in the Dependent Adult Transition Resource Coordinator position, please click here for a position description and/or to apply.

Find a Local TSC Clinic

To find the TSC Clinic nearest to you, visit the TSC Clinic page.

Upcoming Events

Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.

Don’t miss out on any updates!

Click here  to join the mailing list for the TS Alliance of Tennessee and be notified of all upcoming events.

You can also visit us on Facebook to receive the latest Community Alliance updates!

If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.