TS Alliance of St. Louis and Southern Illinois

EST. 2002

Click here for a description of our Community Alliance program.

The TS Alliance of St. Louis and Southern Illinois is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TS Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.

Volunteer Leadership

Chair

Name: Gwen Montaigne
City, State: Saint Charles, MO
Phone: (314) 309-7921
Email: tawanda1951@yahoo.com
Short Bio and Connection to TSC: I have lived my whole life with an influence of TSC. Whether it be supporting my brother, myself, or my daughter. My Dad was a spontaneous diagnosis and we were not aware that he had it until my brother was diagnosed. They just thought he had childhood epilepsy. We all have tubers in the brain and epilepsy. My daughter also struggles with this so I have re-committed myself to help find a cure for TSC. As I am now an advocate for my daughter as she goes through life with the complications of TSC.

Vice Chair

This position is currently open. If you are interested in the Vice Chair position, please click here for a position description and/or to apply.

Step Forward to Cure TSC Walk Chair

This position is currently open. If you are interested in the Walk Chair position, please click here for a position description and/or to apply.

Regional Leadership

Adult Regional Coordinator

Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.

Adult Regional Coordinator, Region 4

States served: KS, MO, OK, AR, LA, TX

Jake IrbyName: Jake Irby
City, State: Austin, TX
Phone:Home: (512) 249-7337, Cell: (512) 586-8895
Email: irby.jake@gmail.com
Other volunteer positions held in addition to Adult Regional Coordinator: None
Connection to TSC: Adult with TSC

Dependent Adult Transition Resource Coordinator

Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver.  The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.

This position is currently open. If you are interested in the Dependent Adult Transition Resource Coordinator position, please click here for a position description and/or to apply.

Find a Local TSC Clinic

To find the TSC Clinic nearest to you, visit the TSC Clinic page.

Upcoming Events

Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.

Don’t Miss Any Updates!

Click here to join the mailing list for the TS Alliance of St. Louis and Southern Illinois and be notified of all upcoming events.

You can also visit us on Facebook to receive the latest Community Alliance updates!

If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.