TS Alliance of the Rocky Mountain Region
EST. 2001
Serves the states of Colorado, Wyoming and New Mexico.
Click here for a description of our Community Alliance program.
The TS Alliance of the Rocky Mountain Region is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TS Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.
Volunteer Leadership
Chair
Name: Dana Holinka
City, State: Northglenn, CO
Phone: 303-255-7093
Email: emme01@msn.com
Other volunteer positions held in addition to Chair: Clinic Ambassador
Short Bio and connection to TSC: I have an adult daughter with TSC and have been involved with the TS Alliance since 2001. I enjoy helping individuals and families work through the many challenges and struggles associated with Tsc. The TS Alliance has become a part of my family and I love being a part of an organization that gives me strength and hope!
Step Forward to Cure TSC Walk Chair
Name: Alison Brainard
City, State: Denver, CO
Phone: (678) 836-7874
Email: alisonbrainard@gmail.com
Other volunteer positions held in addition to Walk Chair: None
Connection to TSC: Our youngest son, Tyler, has TSC, and is rather severely afflicted. We are both physicians at the University of Colorado Hospital, and have made it our mission to continue educating our colleagues and friends about TSC. This was our first year as co-walk chairs, and we hope to continue to think outside the box, and raise more awareness and funding!
Regional Leadership
Adult Regional Coordinator
Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.
Adult Regional Coordinator, Region 3
States served: ND, SD, NE, MN, IA, WI, CO
Name: Seth Fritts
City, State: Arvada, CO
Phone: (917) 324-6708
Email: seth.fritts@yahoo.com
Dependent Adult Transition Resource Coordinator
Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver. The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.
Dependent Adult Transition Resource Coordinator, Colorado
Name: Cindy Fowler
City, State: Littleton, CO
Phone: (303) 434-4365
Email: chcinrox@aol.com
Other volunteer positions held in addition to Dependent Adult Transition Resource Coordinator: None
Connection to TSC: Parent of an Adult
Find a Local TSC Clinic
To find the TSC Clinic nearest to you, visit the TSC Clinic page.
Upcoming Events
Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.
Don’t Miss Any Updates!
Click here to join the mailing list for the TS Alliance of the Rocky Mountain Region and be notified of all upcoming events.
You can also visit us on Facebook to receive the latest Community Alliance updates!
If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.