TS Alliance of Ohio

EST. 2002

Click here for a description of our Community Alliance program.

The TS Alliance of Ohio is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TS Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.

Volunteer Leadership

Co-Chair

Name: Donnie Bilbrey
City, State: Middletown, OH
Phone: 719-285-5274
Email: mrbilbrey77@gmail.com
Connection to TSC: I have been involved with TSC through my 12 year old step-son for approximately 6 years now.  Since being around him and growing with him, we have had many learning moments and moments of frustration. The direct involvement has taught me many things both about being a parent and dealing with this disease.  Constant research and question asking have been our tools of choic

Co-Chair

Name: Rebecca Bilbrey
City, State: Middletown, OH
Phone: 719-285-5590.
Email: beccablueyes@gmail.com

Step Forward to Cure TSC Walk Chair (Cincinnatti)

Name: Nathlie Mortine
City, State: Cincinnati, OH
Phone: 513-600-2243
Email: Nmortine@bankwith1st.com
Connection to TSC: Nathalie is originally from Oxford, OH and graduated from Capital University with a BA in International Studies. Currently, she resides in Springdale, OH as a single mom with 2.5 year old who was diagnosed with TSC at 2 weeks old.  She is a Mortgage Banker with 1st National Bank, but for fun she likes to be social with friends, meet new people/network, invest in real estate and learn sign language so she can have another form of communication with her apraxic son.

Step Forward to Cure TSC Walk Chair (Cleveland)

Lori QuirinoName: Lori Quirino
City, State: Strongsville, OH
Phone: 216-924-2182
Email: Lquirino@roadrunner.com
Other volunteer positions held in addition to Walk Chair: None
Connection to TSC: My husband Nick and I live 20 minutes southwest of Cleveland with our four children. Our youngest daughter, Chloe, has TSC. She was diagnosed at two weeks old. We have been coordinating the walk for the Cleveland area since 2013. We are thankful for the connections we have made through the TS Alliance and this annual walk and look forward to many more.

Regional Leadership

Adult Regional Coordinator

Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.

Adult Regional Coordinator, Region 5

States served: MI, IN, OH, PA, IL

Brooke SimsaName: Brooke Simsa
City, State: Findlay, OH
Phone: 419-788-5626
Email: Brooke2330@gmail.com
Other volunteer positions held in addition to Adult Regional Coordinator: None
Connection to TSC: Adult with TSC, Parent of Child with TSC

Dependent Adult Transition Resource Coordinator

Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver.  The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.

Dependent Adult Transition Resource Coordinator, Ohio

Name: Nancy Weir
City, State: Dayton, OH
Phone: (937) 259-0770
Email: weirnancy@gmail.com
Other volunteer positions held in addition to Dependent Adult Transition Resource Coordinator: None
Connection to TSC: Parent of an Adult

Find a Local TSC Clinic

To find the TSC Clinic nearest to you, visit the TSC Clinic page.

Upcoming Events

Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.

Don’t Miss Any Updates!

Click here to join the mailing list for the TS Alliance of Ohio and be notified of all upcoming events.

You can also visit us on Facebook to receive the latest Community Alliance updates!

If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.