TS Alliance of Ohio
Click here for a description of our Community Alliance program.
The TS Alliance of Ohio is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TS Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.
Name: Donnie and Rebecca Bilbrey
City, State: Middletown, OH
Phone: 719-285-5274 (Donnie) and 513-433-9289 (Rebecca)
Connection to TSC: Donnie and Rebecca relocated from Colorado to the Cincinnati Metro Area in 2015 and became involved with the TS Alliance in 2017, eventually becoming Co-Chairs of the TS Alliance of Ohio. They have three children at home, including a teenage son, Gabriel, who has TSC. Gabe was diagnosed at six months old. He has had many struggles associated with this illness, and thankfully the Bilbreys found Cincinnati Children’s Hospital and its amazing TSC Clinic. As Co-Chairs of the TS Alliance of Ohio, they have planned and participated in many events, meeting tons of new families and friends through these community activities.
Step Forward to Cure TSC Walk Chair (Cincinnatti)
Name: Nathlie Mortine
City, State: Cincinnati, OH
Connection to TSC: Nathalie is originally from Oxford, OH and graduated from Capital University with a BA in International Studies. Currently, she resides in Springdale, OH as a single mom with 2.5 year old who was diagnosed with TSC at 2 weeks old. She is a Mortgage Banker with 1st National Bank, but for fun she likes to be social with friends, meet new people/network, invest in real estate and learn sign language so she can have another form of communication with her apraxic son.
Step Forward to Cure TSC Walk Chair (Cleveland)
Name: Lori Quirino
City, State: Strongsville, OH
Other volunteer positions held in addition to Walk Chair: None
Connection to TSC: My husband Nick and I live 20 minutes southwest of Cleveland with our four children. Our youngest daughter, Chloe, has TSC. She was diagnosed at two weeks old. We have been coordinating the walk for the Cleveland area since 2013. We are thankful for the connections we have made through the TS Alliance and this annual walk and look forward to many more.
Adult Regional Coordinator
Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.
Adult Regional Coordinator, Region 5
States served: MI, IN, OH, PA, IL
Name: Brooke Simsa
City, State: Findlay, OH
Other volunteer positions held in addition to Adult Regional Coordinator: None
Connection to TSC: Adult with TSC, Parent of Child with TSC
Dependent Adult Transition Resource Coordinator
Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver. The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.
Dependent Adult Transition Resource Coordinator, Ohio
Name: Nancy Weir
City, State: Dayton, OH
Phone: (937) 259-0770
Other volunteer positions held in addition to Dependent Adult Transition Resource Coordinator: None
Connection to TSC: Parent of an Adult
Find a Local TSC Clinic
To find the TSC Clinic nearest to you, visit the TSC Clinic page.
Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.
Don’t Miss Any Updates!
Click here to join the mailing list for the TS Alliance of Ohio and be notified of all upcoming events.
You can also visit us on Facebook to receive the latest Community Alliance updates!
If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.