TS Alliance of Northern California

EST. 2001

Click here for a description of our Community Alliance program.

The TS Alliance of Northern California is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TS Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.

Volunteer Leadership

Co-Chair

Name: Lilian Ansari
City, State: Oakland, CA
Phone: (510) 388-6889
Email: Lilian@ansari.us.com
Other volunteer positions held in addition to Chair: None
Short Bio and connection to TSC: Parent

Co-Chair

Name: Jennifer Yeamans
City, State: Livermore, CA
Phone: (415) 845-9838
Email: jennifer.yeamans@gmail.com
Other volunteer positions held in addition to Chair: None
Short Bio and connection to TSC: Parent

Vice Chair

This position is currently open. If you are interested in the Vice Chair position, please click here for a position description and/or to apply.

Step Forward to Cure TSC Walk Chair

Name: Bridget Britt
City, State: Fremont, CA
Phone: (530) 219-6844
Email: Bridget.walsh216@gmail.com
Other volunteer positions held in addition to Walk Chair:None
Connection to TSC: Mom of two beautiful girls, Molly (3 1/2) and Nora, 9 month). My daughter, Molly, was diagnosed with TSC at 3 months old and I am committed to helping raise awareness and money to cure TSC.

Regional Leadership

Adult Regional Coordinator

Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.

Adult Regional Coordinator, Region 2

States served: NV, UT, CO, CA, AZ, NM

Rob and Shannon GrandiaName: Rob and Shannon Grandia
City, State: Riverside, CA
Phone: Rob Cell: 714-514-3111, Shannon Cell: 714-335-2375, Home: 951-697-8851
Email: grandia@verizon.net
Other volunteer positions held in addition to Adult Regional Coordinator: None
Connection to TSC: Rob – Adult with TSC, Parent of children with TSC, Shannon – Spouse of Adult with TSC, Parent of children with TSC

Dependent Adult Transition Resource Coordinator

Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver.  The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.

This position is currently open. If you are interested in the Dependent Adult Transition Resource Coordinator position, please click here for a position description and/or to apply.

Find a Local TSC Clinic

To find the TSC Clinic nearest to you, visit the TSC Clinic page.

Upcoming Events

Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.

Don’t Miss Any Updates!

Click here  to join the mailing list for the TS Alliance of Northern California and be notified of all upcoming events.

You can also visit us on Facebook to receive the latest Community Alliance updates!

If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.