TS Alliance of Maryland
Click here for a description of our Community Alliance program.
The TS Alliance of Maryland is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TS Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.
Name: Lauren Shores Shillinger
Address: 5905 Union Ridge Drive, Adamstown, Maryland 21710
Short Bio/Connection to TSC: After graduating from Elon University with a degree in Corporate Communications, I had a 12 year career in the electronic healthcare industry. When our daughter Brynleigh was born I became a stay at home mom. Brynleigh was diagnosed at 9 1/2 months with TSC and even with my electronic healthcare background had never heard the diagnosis of Tuberous Sclerosis Complex. Since her diagnosis, my husband and I were quickly connected with the TS Alliance and began volunteering, advocating, marching for federal funding on Capitol Hill, participating in the National Step Forward to Cure TSC walk, fundraising and much more. We are so thankful for the TS Alliance and all of the TSC families we have met. We have completely dedicated ourselves to making a difference in not only Brynleigh’s life and all who are affected by TSC.
Step Forward to Cure TSC Walk Co-Chairs
Name: Lauren Shores Shillinger
Name: Michal Ceplar
Adult Regional Coordinator
Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.
Adult Regional Coordinator, Region 8
States served: DE, VA, MD, NC, SC, WV, D.C.
Name: Kathy Henkel
City, State: Waynesboro, VA
Other volunteer positions held in addition to Adult Regional Coordinator: None
Connection to TSC: Adult and Parent
Dependent Adult Transition Resource Coordinator
Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver. The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.
This position is currently open. If you are interested in the Dependent Adult Transition Resource Coordinator position, please click here for a position description and/or to apply.
Find a Local TSC Clinic
To find the TSC Clinic nearest to you, visit the TSC Clinic page.
Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.
Don’t miss out on any updates!
Click here to join the mailing list for the TS Alliance of Maryland and be notified of all upcoming events.
You can also visit us on Facebook to receive the latest Community Alliance updates!
If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.