TS Alliance of the Heartland

EST. 2005
Serves the states of Iowa and Nebraska.

Click here for a description of our Community Alliance program.

The TS Alliance of the Heartland is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TS Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.

Volunteer Leadership

Chair
courtney-gould-ia

Name: Courtney Gould
City, State: Sioux City, IA
Phone: 712-333-3747
Email : Ebbiern@gmail.com
Other volunteer positions held in addition to Chair: None
Short Bio and connection to TSC: I am a mom of 3 boys and wife to a wonderful husband. I live in Iowa and have been a Registered Nurse for 12 years. I first heard about TSC when I had an ultrasound at 35 weeks pregnant. Cardiac rhabdomyomas were found on the ultrasound and he was diagnosed with TSC a month later. Since the diagnosis, I realized that I would like to get involved with the TS Alliance for my son and others with TSC. I look forward to bringing the TSC community together and acquiring TSC research money so we can someday find a cure.

Vice Chair

This position is currently open. If you are interested in the Vice Chair position, please click here for a position description and/or to apply.

Step Forward to Cure TSC Walk Chair

This position is currently open. If you are interested in the Walk Chair position, please click here for a position description and/or to apply.

Regional Leadership

Adult Regional Coordinator

Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.

Adult Regional Coordinator, Region 3

States served: ND, SD, NE, MN, IA, WI, CO

seth-frittsName: Seth Fritts
City, State: Arvada, CO
Phone: (917) 324-6708
Email: seth.fritts@yahoo.com

Dependent Adult Transition Resource Coordinator

Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver.  The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.

This position is currently open. If you are interested in the Dependent Adult Transition Resource Coordinator position, please click here for a position description and/or to apply.

Find a local TSC Clinic

To find the TSC Clinic nearest to you, visit the TSC Clinic page.

Upcoming Events

Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.

Don’t miss out on any updates!

Click here to join the mailing list for the TS Alliance of the Heartland and be notified of all upcoming events.

You can also visit us on Facebook to receive the latest Community Alliance updates! (link to: )

If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.