TS Alliance of Florida
Click here for a description of our Community Alliance program.
The TS Alliance of Florida is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TS Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.
Name: Vanessa Vazquez
City, State: Miami, FL
Short Bio and connection to TSC: Our son, Max Lucca, was diagnosed with Tuberous Sclerosis in 2008, just two weeks after being born. We immediately turned to the TS Alliance for help, guidance, and support. That same year, we hosted our first walk and we’ve been involved ever since. From our annual walk, to the March on the Hill, to ensuring our Latino community is supported, we would not have it any other way. It is an honor to be a part of such an amazing group of people; a group who refuses to give up!
Name: Amy Hightower
City, State: Tampa, FL
Other volunteer positions held in addition to Chair: Step Forward to Cure TSC Walk Chair
Short Bio and connection to TSC: My son Arthur is 3 years old & was diagnosed with TSC at birth. He has benign tumors in his brain, heart, eyes, kidneys & skin. Although he has encountered many issues due to TSC, he has been seizure free since December 2015! Arthur has a love for life that is contagious. He inspires me to keep fighting to find a cure for TSC. The TS Alliance & the families I have met, have been such a strong support for us. I have hope of a better life for Arthur & for all those affected by TSC!
This position is currently open. If you are interested in the Vice Chair position, please click here for a position description and/or to apply.
Step Forward to Cure TSC Walk Chair
Amy Hightower: See information above.
Adult Regional Coordinator
Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.
Adult Regional Coordinator, Region 6
States served: KY, TN, MS, AL, GA, FL
Name: Mark Martin
City, State: Murfreesboro, TN
Other volunteer positions held in addition to Adult Regional Coordinator: Clinic Ambassador (make clickable to Clinic Ambassador description on clinic website)
Connection to TSC: Adult with TSC, Parent of child with TSC
Dependent Adult Transition Resource Coordinator
Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver. The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.
This position is currently open. If you are interested in the Dependent Adult Transition Resource Coordinator position, please click here for a position description and/or to apply.
Find a local TSC Clinic
To find the TSC Clinic nearest to you, visit the TSC Clinic page.
Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.
Don’t miss out on any updates!
Click here to join the mailing list for the TS Alliance of Florida and be notified of all upcoming events.
You can also visit us on Facebook to receive the latest Community Alliance updates!
If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.