TS Alliance of Connecticut

EST. 2006
Serves the states of Connecticut and Rhode Island.

Click here for a description of our Community Alliance program.

The TS Alliance of Connecticut is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TS Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.

Volunteer Leadership

Chair

Name: Jennifer Waldron
City, State: New London, CT
Phone: 860-235-4700
Email: jaw81873@gmail.com
Other volunteer positions held in addition to Chair: None
Short Bio and connection to TSC: Adult with TSC

Vice Chair

This position is currently open. If you are interested in the Vice Chair position, please click here for a position description and/or to apply.

Step Forward to Cure TSC Walk Chair

rebecca-flor-thereaultName: Rebecca Flor Thereault
City, State: Manchester, CT
Phone: (860) 965-5184
Email: rebecca.flor@gmail.com
Other volunteer positions held in addition to Walk Chair: None
Connection to TSC: Rebecca Thereault resides in Connecticut with her husband, Jeff, and two young children, Kaleigh (TSC2) and Jamsion (no TSC).  She first heard of Tuberous Sclerosis Complex, in October 2009 during a routine ultrasound.  The only comforting words that she read in those early days came from the TS Alliance.  She has been a member and volunteer since 2010 and took on chairing the CT Step Forward walk in 2013.  Rebecca loves spending time with her children and family.  In her spare time, she is a fierce advocate for all children through her work as a child advocate.

Regional Leadership

Adult Regional Coordinator

Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.

Adult Regional Coordinator, Region 7

States served: CT, VT, ME, RI, NH, NY, MA

Name: Scott Moskowitz
City, State: NY
Phone: 516-535-9105
Email: scotttsc01@gmail.com
Other volunteer positions held in addition to Adult Regional Coordinator: None
Connection to TSC: Adult with TSC

Dependent Adult Transition Resource Coordinator

Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver.  The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.

This position is currently open. If you are interested in the Dependent Adult Transition Resource Coordinator position, please click here for a position description and/or to apply.

Find a Local TSC Clinic

To find the TSC Clinic nearest to you, visit the TSC Clinic page.

Upcoming Events

Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.

Don’t Miss Out on Any Updates!

Click here to join the mailing list for the TS Alliance of Connecticut and be notified of all upcoming events. You can also visit us on

You can also visit us on Facebook to receive the latest Community Alliance updates!

If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.