TSC Alert

Archive for the ‘News’ Topic

Contribute to a Study About Standard Neurological Care in TSC Children

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Information about the Warsaw Medical University study: Tuberous sclerosis complex (TSC) is a disease with a very high risk of epilepsy and its comorbidities, such as intellectual disability and autistic behavior with significant impact on the daily life of families with this condition.

Important Update about TSC Alert in 2020

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Starting in January, the TSC Alert e-newsletter will be sent out on the second Friday of the month. Furthermore, the TS Alliance is transitioning to a new email platform in 2020. If you do not receive the January TSC Alert or have any issues with the newsletter, please let us know: tscalert@tsalliance.org.

Contribute to a Study About Standard Neurological Care in TSC Children

  |  News

Information about the Warsaw Medical University study: Tuberous sclerosis complex (TSC) is a disease with a very high risk of epilepsy and its comorbidities, such as intellectual disability and autistic behavior with significant impact on the daily life of families with this condition.

Come See Us at Upcoming Meetings and Conferences

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The Tuberous Sclerosis Alliance (TS Alliance) will be exhibiting at several upcoming meetings this year: American Academy of Pediatrics National Conference and Exhibition in New Orleans, LA (Exhibit Dates: October 26-28, Booth Number: 546) American Society of Nephrology Meeting in Washington, DC (Exhibit Dates: November 7-9, Booth Number: 2906) American Epilepsy Society Annual Meeting in Baltimore, MD (Exhibit Dates: December 7-9, Booth Number: 949) If you’re attending any of these meeting be sure to stop by our booth and say hello!

TANDem Research Project Positions Available

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The TANDem team is seeking two highly motivated and enthusiastic applicants to join their dynamic and international research consortium. Positions available in Belgium or South Arica include: PhD Student (four years, full-time) TANDem Project Coordinator (four years, full-time) See the job descriptions above for minimum qualifications. The deadline to apply is August 31, 2019. To apply send your motivational letter and CV via email to Prof. Petrus de Vries (petrus.devries@uct.ac.za) and Prof. Anna Jansen (anna.jansen@uzbrussel.be).

TANDem Research Project Positions Available

  |  News

The TANDem team is seeking two highly motivated and enthusiastic applicants to join their dynamic and international research consortium. Positions available in Belgium or South Africa include: PhD Student (four years, full-time) TANDem Project Coordinator (four years, full-time) See the job descriptions above for minimum qualifications. The deadline to apply is August 31, 2019. To apply send your motivational letter and CV via email to Prof. Petrus de Vries (petrus.devries@uct.ac.za) and Prof. Anna Jansen (anna.jansen@uzbrussel.be).

April TSC Preclinical Consortium Meeting

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On April 1 members of the Tuberous Sclerosis Complex (TSC) Preclinical Consortium met in Silver Spring, Maryland to discuss ongoing preclinical projects and set priorities for the rest of the year.

International TAND Research Project Awarded Funding

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Congratulations to Drs. Petrus de Vries (University of Cape Town) and Anna Jansen (UZ Brussel – Vrije Universiteit Brussel) on being awarded funding from the Tuberous Sclerosis Association and the King Baudouin Foundation. Funding for the TANDem Project was awarded at a King Baudouin Foundation awards ceremony on Thursday, April 4, 2019.

Submit Gomez Award Nominations by April 12

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The Tuberous Sclerosis Alliance grants the Manuel R. Gomez Award to individuals who have made a significant impact on our understanding of TSC in research and/or have impacted the delivery of clinical care for individuals with TSC.