fbpx

TSC Alert

Archive for the ‘News’ Topic

TS Alliance Partners with NeurologyLive™

  |  News

The Tuberous Sclerosis Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA updates and more. Subscribe

COVID-19 Considerations for TSC Medical Professionals

  |  News

Because current data do not provide clear answers for many TSC patients’ questions, drawing on opinions from key leaders in TSC clinical care, the TS Alliance’s Science and Medical Committee, drawing on opinions from key leaders in TSC clinical care, offers some general considerations for how to answer questions from TSC patients about COVID-19 and how to provide individualized care for TSC patients during the COVID-19 pandemic based on the information available to date in the publication listed below.

Invitation to Provide Input to Shape Transformative Research Priorities and 2020 Epilepsy Research Benchmarks

  |  News

How to join the NINDS Public Crowdsourcing Community Go to: https://ninds.ideascalegov.com You will be asked to register by providing an email address and a password (a unique password that you select) (your email will not be shown). Upon completing the registration process, go to your inbox to verify your email address by clicking on the link within the verification email sent to you (you may need to check your spam folder for the email). Click the link and input the verification code from your email to bring you inside the NINDS Community account, where you will set your password and then…

TS Alliance Partners with NeurologyLive™

  |  News

The Tuberous Sclerosis Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA updates and more. Subscribe

TS Alliance Contributes Data to RDCA-DAP

  |  News

The TS Alliance has recently contributed data to The Rare Disease Cures Accelerator–Data and Analytics Platform (RDCA-DAP), funded by the U.S. Food and Drug Administration and developed by the Critical Path Institute and the National Organization for Rare Disorders.

COVID-19 Considerations for TSC Medical Professionals

  |  News

Because current data do not provide clear answers for many TSC patients’ questions, drawing on opinions from key leaders in TSC clinical care, the TS Alliance’s Science and Medical Committee, drawing on opinions from key leaders in TSC clinical care, offers some general considerations for how to answer questions from TSC patients about COVID-19 and how to provide individualized care for TSC patients during the COVID-19 pandemic based on the information available to date in the publication listed below.

TS Alliance Partners with NeurologyLive™

  |  News

The Tuberous Sclerosis Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA updates and more. Subscribe

COVID-19 Considerations for TSC Medical Professionals

  |  News

Because current data do not provide clear answers for many TSC patients’ questions, drawing on opinions from key leaders in TSC clinical care, the TS Alliance’s Science and Medical Committee, drawing on opinions from key leaders in TSC clinical care, offers some general considerations for how to answer questions from TSC patients about COVID-19 and how to provide individualized care for TSC patients during the COVID-19 pandemic based on the information available to date in the publication listed below.

TS Alliance Contributes Data to RDCA-DAP

  |  News

The TS Alliance has recently contributed data to The Rare Disease Cures Accelerator–Data and Analytics Platform (RDCA-DAP), funded by the U.S. Food and Drug Administration and developed by the Critical Path Institute and the National Organization for Rare Disorders.

TS Alliance Partners with NeurologyLive™

  |  News

The Tuberous Sclerosis Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA updates and more. Subscribe