TSC Alert

Archive for the ‘News’ Topic

TS Alliance Partners with NeurologyLive™

  |  News

The Tuberous Sclerosis Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up-to-date on clinical trial news, FDA updates and more.

COVID-19 Considerations for TSC Medical Professionals

  |  News

Because current data do not provide clear answers for many TSC patients’ questions, drawing on opinions from key leaders in TSC clinical care, the TS Alliance’s Science and Medical Committee offers some general considerations for how to answer questions from TSC patients about COVID-19 and how to provide individualized care for TSC patients during the COVID-19 pandemic based on the information available to date in the publication listed below.

TS Alliance Partners with NeurologyLive™

  |  News

The Tuberous Sclerosis Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up-to-date on clinical trial news, FDA updates and more. Subscribe

COVID-19 Considerations for TSC Medical Professionals

  |  News

Because current data do not provide clear answers for many TSC patients’ questions, drawing on opinions from key leaders in TSC clinical care, the TS Alliance’s Science and Medical Committee offers some general considerations for how to answer questions from TSC patients about COVID-19 and how to provide individualized care for TSC patients during the COVID-19 pandemic based on the information available to date in the publication listed below. Download Physician Recommendations You can see all of the TS Alliance’s COVID-19 recommendations here.    

TS Alliance Partners with NeurologyLive™

  |  News

The Tuberous Sclerosis Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up-to-date on clinical trial news, FDA updates and more.

Contribute to a Study About Standard Neurological Care in TSC Children

  |  News

Information about the Warsaw Medical University study: Tuberous sclerosis complex (TSC) is a disease with a very high risk of epilepsy and its comorbidities, such as intellectual disability and autistic behavior with significant impact on the daily life of families with this condition.

Contribute to a Study About Standard Neurological Care in TSC Children

  |  News

Information about the Warsaw Medical University study: Tuberous sclerosis complex (TSC) is a disease with a very high risk of epilepsy and its comorbidities, such as intellectual disability and autistic behavior with significant impact on the daily life of families with this condition.

Important Update about TSC Alert in 2020

  |  News

Starting in January, the TSC Alert e-newsletter will be sent out on the second Friday of the month. Furthermore, the TS Alliance is transitioning to a new email platform in 2020. If you do not receive the January TSC Alert or have any issues with the newsletter, please let us know: tscalert@tsalliance.org.

Contribute to a Study About Standard Neurological Care in TSC Children

  |  News

Information about the Warsaw Medical University study: Tuberous sclerosis complex (TSC) is a disease with a very high risk of epilepsy and its comorbidities, such as intellectual disability and autistic behavior with significant impact on the daily life of families with this condition.