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TSC Alert

Archive for the ‘Clinical Studies’ Topic

New Clinical Trial Finder Tool

The TS Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here. Are you conducting a study involving patients with TSC that is not listed in the online tool? Contact Zoë Fuchs, TS Alliance Science Project Coordinator, at zfuchs@tsalliance.org.

New Clinical Trial Finder Tool

The TS Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here. Are you conducting a study involving patients with TSC that is not listed in the online tool? Contact Zoë Fuchs, TS Alliance Science Project Coordinator, at zfuchs@tsalliance.org.

New Clinical Trial Finder Tool

The TS Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here. Are you conducting a study involving patients with TSC that is not listed in the online tool? Contact Zoë Fuchs, TS Alliance Science Project Coordinator, at zfuchs@tsalliance.org.

New Clinical Trial Finder Tool

The TS Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here. Are you conducting a study involving patients with TSC that is not listed in the online tool? Contact Zoë Fuchs, TS Alliance Science Project Coordinator, at zfuchs@tsalliance.org.

Research Study on TSC and COVID-19

The TS Alliance is collecting clinical information about individuals with TSC who had COVID-19 infection. Please circulate to your patients: The Tuberous Sclerosis Alliance is collecting clinical information in their TSC Natural History Database about individuals with TSC who had COVID-19 infection. TSC researchers will be using this information to help determine how medications such as everolimus (Afinitor®, Zortress®) or sirolimus (Rapamune®) and other TSC conditions affect the risk of getting COVID-19 and its severity. If you or your loved one with TSC had COVID-19 confirmed by testing, please consider participating in the TS Alliance TSC Natural History Database. To…

New Clinical Trial Finder Tool

The TS Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here. Are you conducting a study involving patients with TSC that isn’t listed in the online tool? Contact Zoë Fuchs, TS Alliance Science Project Coordinator, at zfuchs@tsalliance.org.

Research Study on TSC and COVID-19

The TS Alliance is collecting clinical information about individuals with TSC who had COVID-19 infection. Please circulate to your patients: The Tuberous Sclerosis Alliance is collecting clinical information in their TSC Natural History Database about individuals with TSC who had COVID-19 infection. TSC researchers will be using this information to help determine how medications such as everolimus (Afinitor®, Zortress®) or sirolimus (Rapamune®) and other TSC conditions affect the risk of getting COVID-19 and its severity. If you or your loved one with TSC had COVID-19 confirmed by testing, please consider participating in the TS Alliance TSC Natural History Database. To…