fbpx

2021 E-Webinar Series

For 2021, the TS Alliance will host monthly educational webinars on a variety of TSC related topics of interest featuring known experts in the TSC community. These free 1-hour presentations include an open question-and-answer period. This series is composed of educational webinars focusing on four topic areas:

  • Life Stages of TSC (epilepsy, tumor growth, skin manifestations and education)
  • Transition Workshops
  • TSC-Associated Neuropsychiatric Disorders (TAND)
  • Research Updates/Clinical Trials

view Previous E-Webinars

Life Stages Series Sponsored By

 

Transition Workshops Sponsored By

Transition Workshops Held in Partnership With

 

 

 


(Dates tentative and subject to change)

April

April 21, 2021 — Early Interventions
5 PM Eastern | 4 PM Central | 3 PM Mountain | 2 PM Pacific
Presented by Shafali Jeste, MD and Connie Kasari, PhD

REGISTER

 

April 27, 2021 — Genetics and Pregnancy in Tuberous Sclerosis Complex
1 PM Eastern | 12 PM Central | 11 AM Mountain | 10 AM Pacific
Presented by Hope Northrup, MD, Joshua A. Samuels, MD, MPH, and Rosa M. Estrada-Y-Martin, MD, MSc, CMQ, FCCP

REGISTER


May

May 5, 2021 — Guardianship, Supplemental Security Income/Disability, Financial Planning and Waivers

Registration Opening Soom

 

 

Date TBD — Clinical Trial Overview: Cannabidiol Oral Solution as an Add-On Therapy in Infants with Seizures Caused by TSC
Presented by Greenwich Biosciences

Registration Opening Soon


June

June 2, 2021 — College, Housing and Employment

Registration Opening Soon

 

 

Date TBD — Aggressive Behavior and Interventions

Registration Opening Soon

 

 

Date TBD — Lymphangioleiomyomatosis (LAM)

Registration Opening Soon


July

July 7, 2021 — Assisted Living, Assisted Employment and Day Programs

Registration Opening Later This Year

 

 

Date TBD — Topic TBD

Registration Opening Later This Year


August

Date TBD — Research Update

Registration Opening Later This Year

 


September

Date TBD — Sleep

Registration Opening Later This Year

 

 

Date TBD — Genetics

Registration Opening Later This Year

 

 

Date TBD — Contributing to Research
Sponsored by Nobelpharma

Registration Opening Later This Year


October

Date TBD — Tumor Growth: Kidney, Liver, Pancreas

Registration Opening Later This Year


November

Date TBD — Adult-Specific: Anxiety, Anger and Depression

Registration Opening Later This Year

 

 

Date TBD — Refractory Epilepsy 1: Children and Surgery

Registration Opening Later This Year


December

Date TBD — PREVeNT Clinical Trial and Biomarker Study Results

Registration Opening Later This Year

 

 

Date TBD — Medication Options

Registration Opening Later This Year

 

 

Date TBD — Refractory Epilepsy 2: Adults

Registration Opening Later This Year