For 2021, the TS Alliance will host monthly educational webinars on a variety of TSC related topics of interest featuring known experts in the TSC community. These free 1-hour presentations include an open question-and-answer period. This series is composed of educational webinars focusing on four topic areas:
- Life Stages of TSC (epilepsy, tumor growth, skin manifestations and education)
- Transition Workshops
- TSC-Associated Neuropsychiatric Disorders (TAND)
- Research Updates/Clinical Trials
view Previous E-Webinars
Life Stages Series Sponsored By
Transition Workshops Sponsored By
Transition Workshops Held in Partnership With
(Dates tentative and subject to change)
April
April 21, 2021 — Early Interventions
5 PM Eastern | 4 PM Central | 3 PM Mountain | 2 PM Pacific
Presented by Shafali Jeste, MD and Connie Kasari, PhD
April 27, 2021 — Genetics and Pregnancy in Tuberous Sclerosis Complex
1 PM Eastern | 12 PM Central | 11 AM Mountain | 10 AM Pacific
Presented by Hope Northrup, MD, Joshua A. Samuels, MD, MPH, and Rosa M. Estrada-Y-Martin, MD, MSc, CMQ, FCCP
May
May 5, 2021 — Guardianship, Supplemental Security Income/Disability, Financial Planning and Waivers
Registration Opening Soom
Date TBD — Clinical Trial Overview: Cannabidiol Oral Solution as an Add-On Therapy in Infants with Seizures Caused by TSC
Presented by Greenwich Biosciences
Registration Opening Soon
June
June 2, 2021 — College, Housing and Employment
Registration Opening Soon
Date TBD — Aggressive Behavior and Interventions
Registration Opening Soon
Date TBD — Lymphangioleiomyomatosis (LAM)
Registration Opening Soon
July
July 7, 2021 — Assisted Living, Assisted Employment and Day Programs
Registration Opening Later This Year
Date TBD — Topic TBD
Registration Opening Later This Year
August
Date TBD — Research Update
Registration Opening Later This Year
September
Date TBD — Sleep
Registration Opening Later This Year
Date TBD — Genetics
Registration Opening Later This Year
Date TBD — Contributing to Research
Sponsored by Nobelpharma
Registration Opening Later This Year
October
Date TBD — Tumor Growth: Kidney, Liver, Pancreas
Registration Opening Later This Year
November
Date TBD — Adult-Specific: Anxiety, Anger and Depression
Registration Opening Later This Year
Date TBD — Refractory Epilepsy 1: Children and Surgery
Registration Opening Later This Year
December
Date TBD — PREVeNT Clinical Trial and Biomarker Study Results
Registration Opening Later This Year
Date TBD — Medication Options
Registration Opening Later This Year
Date TBD — Refractory Epilepsy 2: Adults
Registration Opening Later This Year