The TS Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here. Are you conducting a study involving patients with TSC that isn’t listed in the online tool? Contact Zoë Fuchs, TS Alliance Science Project Coordinator, at firstname.lastname@example.org.
The Tuberous Sclerosis Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up-to-date on clinical trial news, FDA updates and more.
Information about the Warsaw Medical University study: Tuberous sclerosis complex (TSC) is a disease with a very high risk of epilepsy and its comorbidities, such as intellectual disability and autistic behavior with significant impact on the daily life of families with this condition.
The International Tuberous Sclerosis Complex Research Conference 2020: A Vision for the Future will take place November 12-14, 2020 at the Royal College of Physicians in London, UK. The conference will be organized by the Tuberous Sclerosis Association. Learn More
Are you looking for samples from TSC patients to use in your lab? The TSC Biosample Repository has a growing collection of samples tied to phenotypic data. In most cases, we can ship these samples at no charge to the investigator.
All stakeholders are invited to attend the upcoming NIH conference, “Curing the Epilepsies 2020: Setting Research Priorities.”
The Neuroendocrine Tumor Research Foundation (NETRF) just announced the 2020 round of funding for basic, translational and clinical research of neuroendocrine tumors (NETs). There are four different neuroendocrine cancer research grants (Accelerator, Investigator, Pilot and Mentored Awards) with cancer research grants ranging from $100,000 to $1.2 million. Letters of Intent are due March 9, 2020.
The TS Alliance is now accepting letters of intent for Postdoctoral Fellowships and Early Stage Investigator Research Grants. Learn more about our funding mechanisms and eligibility requirements on our Grants page. Letters of reference are required for Postdoctoral Fellowships, so please begin the LOI process early to ensure your references have time to prepare and submit their letters. Please submit your LOIs through proposalCENTRAL by Monday, April 6 at 11:59 pm Eastern Time.