All stakeholders are invited to attend the upcoming NIH conference, “Curing the Epilepsies 2020: Setting Research Priorities.”
The TS Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here. Are you conducting a study involving patients with TSC that isn’t listed in the online tool? Contact Zoë Fuchs, TS Alliance Science Project Coordinator, at firstname.lastname@example.org.
The International Tuberous Sclerosis Complex Research Conference 2020: A Vision for the Future will take place November 12-14, 2020 at the Royal College of Physicians in London, UK. The conference will be organized by the Tuberous Sclerosis Association.
Information about the Warsaw Medical University study: Tuberous sclerosis complex (TSC) is a disease with a very high risk of epilepsy and its comorbidities, such as intellectual disability and autistic behavior with significant impact on the daily life of families with this condition.
Are you looking for samples from TSC patients to use in your lab? The TSC Biosample Repository has a growing collection of samples tied to phenotypic data. In most cases, we can ship these samples at no charge to the investigator.
The LAM Foundation is now accepting abstracts for the 2020 International LAM Research Conference. Submission Deadline: Friday, January 31, 2020. Studies on basic, translational, and clinical/psychosocial aspects of tuberous sclerosis and lymphangioleiomyomatosis (LAM) are welcomed. To begin your submission you must log in to the Foundation’s grant/abstract website – CLICK HERE.