Chair: Wendy Scheck, 5schecks@gmail.com
Committee Members at Large: Rachel Macri, Joy Johnson
Public Relations: Heather Blanchard
Government Advocacy: Dee Treimer
Clinic Ambassador: Reiko Donato
Step Forward to Cure TSC Chair: Reiko Donato, donator@bellsouth.net
Join the TS Alliance of Atlanta/North Georgia on Facebook.
No community gatherings are currently scheduled; please check back later.
Atlanta Tuberous Sclerosis Multidisciplinary Clinic without Walls
Located at the Judson L. Hawk Clinic for Children at Children's Healthcare of Atlanta
5455 Meridian Mark Road NE, Atlanta, GA 30342
Phone: 404-785-2186 or 1-800-803-5437 Fax: 404-785-2220
Medical Director: Robert Flamini, M.D.
Nurse Coordinator: Jennifer L. Ganote, RN, BA, ASN, CCRC
The Clinic will be a center “without walls,” meaning that aside from neurology, neuropsychology, neurosurgery and all hospital-based tests, related specialists are available through coordination by the Clinic Nurse Coordinator. Specialties offered through the Clinic are:
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Cardiology
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Dermatology
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Genetic counseling
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Nephrology
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Neurology
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Neuropsychology
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Neurosurgery
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Ophthalmology
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Pulmonology
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Social work
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Urology
The Clinic is open to the children from birth through their 21st birthday. Adults with TSC will be referred to Dr. Sandra Helmers at Emory University Medical Center. The Clinic will be open on the first Thursday of each month. To make an appointment, please call Jennifer Ganote, Nurse Coordinator at 404-785-2186 or 1-800-803-5437.
A Mysterious Journal
Be sure to get your copy of this new book written by a grandfather of a child with TSC. We are grateful to Mr. Witherspoon for donating proceeds to the TS Alliance! Get your copy now by clicking here.
Save the date! The Step Forward to Cure TSC walkathon is scheduled for May 18, 2013 at Marietta Square in Mariettal, GA. Thank you for all the support in the past and we look forward to another exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Dee Triemer at dtriemer@tsalliance.org. Register today at www.stepforwardtocuretsc.org.
On May 12, 2012, the TS Alliance of Atlanta/N. Georgia held the annual Step Forward to Cure TSC in Roswell, GA. All attendees had a wonderful time, despite the rainy weather, with great food and entertainment. Thank you to all the volunteers that helped to plan the event and congratulations to Reiko Donato for all the hard work as walk chair. Amazing job raising $83,000! Click here to view event pictures on Facebook.