Please join us at any of the four Regional TSC Conferences in 2013! These one-day conferences will provide educational outreach, information on the latest treatment and testing options, basic and transitional research updates, and support options. Every conference will feature each region’s top experts and also provide individuals and families the opportunity to have one-on-one meetings with these experts in a nurturing and supportive environment. The Regional TSC Conference Series will provide a forum much-needed for the growing number of individuals and families facing the daily challenges of TSC.
Registration is $10 per person with the exception of the New York Regional TSC Conference, which is no cost because the TS Alliance was invited as a guest by NYU to participate in their annual FACES conference with a specific TSC track. Click here to register for the New York event.
To register online for a conference in Grand Rapids, Birmingham or Kansas City, simply click here. Or, download and complete this registration form, enclose check or credit card information and mail it to:
TS Alliance
Regional TSC Conference Series
801 Roeder Road, Suite 750
Silver Spring, MD 20910
Please note: Childcare will not be available at any of the conferences.
1. Welcome and TS Alliance Update
2. One-on-One Meetings with the Experts (begin immediately following Welcome and continue until conference end)
3. General Session: Report on the Consensus Conference; Research Update: Basic Science to Drug Discovery to Clinical Trials
4. Break Out Sessions
- Session #1: Current Treatment/Testing Options for Children
- Session #2: Current Treatment/Testing Options for Adults
(Both sessions include question-and-answer period with expert panels)
5. Break Out Sessions
- Session #3: How to Be an Educational Advocate
- Session #4: Adults with TSC Forum: Support, Care and Empowerment
6. Conference Ends with Informal TSC Community Social Gathering
Grand Rapids, Michigan: May 4, 2013
Van Andel Institute Scheduled Speakers Grand Rapids Agenda
333 Bostwick Ave NW
Grand Rapids, MI 49503
New York, New York: May 5, 2013
NYU Comprehensive Epilepsy Center Scheduled Speakers Agenda
223 East 34th Street
New York, NY 10016
NYU Conference PowerPoint Presentations
TSC Science & Medical Update by Steven L. Roberds, PhD
From Bench to Bedside: Current Clinical Trials in LAM by Souheil El-Chamaly, MD, MPH
Birmingham, Alabama: October 19, 2013
University of Alabama-Birmingham TSC Clinic Register Online Now
2000 6th Avenue South, 4th Floor
Birmingham, AL 35233
Kansas City, Missouri: November 9, 2013
Children’s Mercy Clinic Register Online Now
2401 Gillham Road
Kansas City, MO 64108
For more information please contact Christen Bell, Community Outreach Coordinator, at 800-225-6872 or cbell@tsalliance.org.
The 2013 Regional TSC Conference Series is supported by:
