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Please join us at any of the four Regional TSC Conferences in 2013!  These one-day conferences will provide educational outreach, information on the latest treatment and testing options, basic and transitional research updates, and support options.  Every conference will feature each region’s top experts and also provide individuals and families the opportunity to have one-on-one meetings with these experts in a nurturing and supportive environment. The Regional TSC Conference Series will provide a forum much-needed for the growing number of individuals and families facing the daily challenges of TSC.


Registration is $10 per person.

To register online for a conference in Birmingham or Kansas City, simply click here. Or, download and complete this registration form, enclose check or credit card information and mail it to:

TS Alliance
Regional TSC Conference Series
801 Roeder Road, Suite 750
Silver Spring, MD 20910

Please note: Childcare will not be available at any of the conferences.

Sample Regional TSC Conference Agenda

1. Welcome and TS Alliance Update

2. One-on-One Meetings with the Experts (begin immediately following Welcome and continue until conference end)

3. General Session: Report on the Consensus Conference; Research Update: Basic Science to Drug Discovery to Clinical Trials

4. Break Out Sessions

  • Session #1:   Current Treatment/Testing Options for Children
  • Session #2:   Current Treatment/Testing Options for Adults
    (Both sessions include question-and-answer period with expert panels)

5.    Break Out Sessions

  • Session #3: How to Be an Educational Advocate                                              
  • Session #4: Adults with TSC Forum: Support, Care and Empowerment                                                             

6.    Conference Ends with Informal TSC Community Social Gathering

Conference Schedule

Birmingham, Alabama: October 19, 2013 
University of Alabama Alumni House  Register Online Now
1301 10th Avenue South 
Birmingham, AL 35294
Birmingham Agenda  

Kansas City, Missouri: November 9, 2013
Children’s Mercy Clinic   Register Online Now
2401 Gillham Road
Kansas City, MO 64108 
Kansas City Agenda 

Michigan and New York Conference Summaries

The 2013 Regional TSC Conference Series kicked-off in Grand Rapids, MI at the Van Andel Institute on May 4. The conference included TSC individuals, families and physicians. The successful presentations of our expert panelists allowed the TSC community to gain the latest knowledge in TSC research and the resources available to them. The exquisite staff at the Van Andel Institute provided an organized and pleasant environment for all of the conference guests and the TS Alliance is grateful for their partnership in this event.

The TS Alliance partnered with FACES for their annual conference in New York, NY, which took place immediately following the Grand Rapids meeting. On May 5, the TSC community in New York came together at New York University to hear the latest in TSC and epilepsy research. The conference was a special occasion for the TS Alliance to join the FACES and NYU team in supporting the local community. Special thanks to FACES and NYU for their gracious hosting and support for this successful conference. 

NYU Conference PowerPoint Presentations

TSC Science & Medical Update by Steven L. Roberds, PhD
From Bench to Bedside: Current Clinical Trials in LAM by Souheil El-Chamaly, MD, MPH


For more information please contact Christen Bell, Community Outreach Coordinator, at 800-225-6872 or


The 2013 Regional TSC Conference Series is supported by:


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