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Please join us at any of the three Regional TSC Conferences in 2015!  These one-day conferences will provide educational outreach, information on the latest treatment and testing options, basic and transitional research updates, and support options. Every conference will feature each region’s top experts, and attendees will have the opportunity to participate in a meet-the-experts session following the conference presentations. The 2015 Regional TSC Conference Series will provide a forum much-needed for the growing number of individuals and families facing the daily challenges of TSC.

Registration

Registration is $10 per person. Online registration coming soon.

Please note: Childcare will not be available at any of the conferences.

Sample Regional TSC Conference Agenda

8:30 – 9:30 am
Conference Registration Check-in and Adults with TSC Meet-and-Greet

9:30 - 10:30 am
Welcome, TS Alliance Update and General Session: The Future of TSC Research and Practical Guide to Updated Consensus Guidelines

10:30 – 10:45 am
Break

10:45 – 11:45 am
Break Out Session 1: Seizure Types and Treatments 
Break Out Session 2: Current Treatment Options and Clinical Trials for Kidney and LAM

11:45 am – 12:00 pm
Break

12:00 – 1:00 pm
Break Out Session 3: ADHD and Behavioral Challenges in Children with TSC
Break Out Session 4: Sleep Disorders in Adults with TSC  

1:00– 2:00 pm
Lunch 

2:00 – 3:00 pm
Break Out Session 5: Autism Spectrum Disorder and Therapeutic Options (Pediatric)
Break Out Session 6: Mental Health Issues and Advocating for Yourself as an Adult with TSC

3:00 – 3:15 pm
Break

3:15 – 4:30 pm
General Session: Genetics and TSC

Conference Ends, Optional Additional Support and Networking Opportunities

5:00 – 6:00 pm
Meet-the-Experts and Educational Session with Dena Hook

Conference Series Schedule

June 13: St. Paul, Minnesota hosted by the TSC Clinic Without Walls at United Hospital

June 27: Stanford, California at the Northern California TSC Clinic at Lucille Packard Children’s Hospital, Stanford Hospital and Clinics

September 26: Winston-Salem, North Carolina at Wake Forest Baptist Medical Center Tuberous Sclerosis Clinic

Questions?

For more information please contact Christen Bell, Community Outreach Coordinator, at 800-225-6872 or cbell@tsalliance.org.


 
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Unlock the Cure: The Tipping Point in the Battle Against TSC
Tuberous Sclerosis Alliance Overview
La Esclerosis Tuberosa (Spanish Intro to TSC)
Infantile Spasms & TSC: A Devastating Diagnosis
Questions & Answers About the TS Alliance


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