Please join us at any of the three Regional TSC Conferences in 2015! These one-day conferences will provide educational outreach, information on the latest treatment and testing options, basic and transitional research updates, and support options. Every conference will feature each region’s top experts, and attendees will have the opportunity to participate in a meet-the-experts session following the conference presentations. The 2015 Regional TSC Conference Series will provide a forum much-needed for the growing number of individuals and families facing the daily challenges of TSC.
May 3: The first conference in the 2015 Regional TSC Conference Series was held in St. Paul, Minnesota on Sunday, May 3. Eight local experts presented the latest information and resources on topics like seizure types and treatments, sleep issues in adults, genetics and more. More than 50 people attended the conference, enjoyed a catered lunch and had the opportunity to network with other individuals and families as well as the local physicians.
June 27: The second conference in the 2015 Regional TSC Conference Series was held in Stanford, California on Saturday, June 27. Twelve local experts presented the latest information and resources on topics like seizure types and treatments, sleep issues in adults, genetics and more. More than 75 people attended the conference, enjoyed a catered lunch and had the opportunity to network with other individuals and families as well as the local physicians. Download conference presentations on Kidneys and TSC, TSC and LAM, ADHD and Behavioral Challenges in TSC, Genetics of TSC, TSC Consensus Guidelines and Neurosychiatric Issues in TSC.
September 26: Winston-Salem, North Carolina at Graylyn International Conference Center, hosted by Wake Forest Baptist Medical Center Tuberous Sclerosis Clinic | Driving Directions | Area Lodging Options | Final Agenda
Registration is $10 per person. Please note: Childcare will not be available at any of the conferences.
Register online for the June 27 Regional TSC Conference in Stanford, CA
Register online for the September 26 Regional TSC Conference in Winston-Salem, NC
8:30 – 9:30 am
Conference Registration Check-in and Adults with TSC Meet-and-Greet
9:30 - 10:30 am
Welcome, TS Alliance Update and General Session: The Future of TSC Research and Practical Guide to Updated Consensus Guidelines
10:30 – 10:45 am
10:45 – 11:45 am
Break Out Session 1: Seizure Types and Treatments
Break Out Session 2: Current Treatment Options and Clinical Trials for Kidney and LAM
11:45 am – 12:00 pm
12:00 – 1:00 pm
Break Out Session 3: ADHD and Behavioral Challenges in Children with TSC
Break Out Session 4: Sleep Disorders in Adults with TSC
1:00– 2:00 pm
2:00 – 3:00 pm
Break Out Session 5: Autism Spectrum Disorder and Therapeutic Options (Pediatric)
Break Out Session 6: Mental Health Issues and Advocating for Yourself as an Adult with TSC
3:00 – 3:15 pm
3:15 – 4:30 pm
General Session: Genetics and TSC
Conference Ends, Optional Additional Support and Networking Opportunities
5:00 – 6:00 pm
Meet-the-Experts and Educational Session with Dena Hook
For more information please contact Christen Bell, Community Outreach Coordinator, at 800-225-6872 or firstname.lastname@example.org.