This webinar was presented by Dr. Martina Bebin. Download the slides and and view the webinar recording here. ADDITIONAL INFO FROM THE WEBINAR: AfiniTRAC is a comprehensive treatment and reimbursement support program open to eligible patients on Afinitor. Your healthcare provider need to fill out and sign the enrollment form. A patient or caregiver, over the age of 18, also need to fill out and sign the enrollment form. For more information, you can call 1-888-9AfiniTRAC (1-888-923-4648).
This webinar was presented by Orrin Devinsky, MD. Download Dr. Devinsky’s slides or watch the recording of the webinar below.
This webinar was presented by Darcy Krueger, MD, PhD.
This webinar was presented by David Neal Franz, MD and Michael Wong, MD, PhD.
This webinar was presented by Dr. John Bissler. To watch the slide presentation and listen to the audio recording, simply click below:
This webinar was presented by Drs. Shafali Spurling Jeste and Peter W. Newberry. To watch the slide presentation and listen to the audio recording, simply click below:
This webinar was presented by Dr. Hope Northrup. To watch the slide presentation and listen to the audio recording, simply click below:
This teleconference was presented by Dr. Darcy Krueger, Rob Moss and Dr. Mustafa Sahin. For reference while listening, you may access Powerpoint presentations by Dr. Krueger, Rob Moss and Dr. Sahin.
This teleconference features Dr. John Frangioni. View his Powerpoint presentation while listening to the call.
Rob and Lisa Moss, founders of Seizure Tracker, are the featured speakers. View their Powerpoint presentation while you listen to the dicussion.
Dr. Elizabeth Thiele presented this conference, and you can view the accompanying Powerpoint presentation. In addition, Dr. Thiele discussed two online dietary resources you may want to visit: The Charlie Foundation and Matthew's Friends.
This conference was presented by Drs. Hope Northrup and Mary Kay Koenig. View their Powerpoint presentation. Also, see the List of Participating Multi-Center Clinical Trial Sites (please note: clinical trial recruitment doesn't begin until January 2012).
This conference call was presented by Drs. Mustafa Sahin and Darcy Krueger.
Dr. Peter Crino discusses issues related to adults with TSC.
Dr. John Bissler and Dr. Vicky Whittemore discuss kidney involvement in TSC, including current clinical trials.
Dr. Vicky Whittemore, Vice President & Chief Scientific Officer at the TS Alliance, provided an overview of the state of TSC research. View her Powerpoint presentation.
Geraldine Dawson, PhD, and Mustafa Sahin, MD, PhD, spoke about autism spectrum disorder and TSC. Download PDFs of the PowerPoint presentations from Dr. Sahin and Dr. Dawson to view while you listen to the recording.
Dr. Hope Northrup and Dr. Michael Gambello gave a presentation about the relationship between genetics and TSC. Download a PDF of Powerpoints by Dr. Northrup here and here, or click here for Dr. Gambello's Powerpoint.
Dr. John Bissler and Dr. Elizabeth Henske discuss the various aspects of kidney involvement in TSC as well as current treatment options. Access Powerpoint presentations in PDF files from Dr. Bissler and Dr. Henske.
Click here to replay the Oct. 28 educational teleconference featuring Dr. Martina Bebin discussing current TSC Clinical Trials.
Click here to replay the Nov. 11 educational teleconference featring Drs. David Franz and Michael Frost.
Dr. Howard Weiner, Dr. Guy McKann and Dr. Vicky Whittemore discuss TSC epilepsy surgery, including patient evaluation, surgical outcome and investigation of resected tissue.
Dr. Michael Wong, Dr. Elizabeth Henske and Dr. Vicky Whittemore discuss current TSC research, including a biomedical research overview, clinical manifestations and problems in TSC, basic TSC research and clinical trials of rapamycin in people with TSC. View the presentation outline.
TS Alliance research teleconferences are supported by an educational grant from: