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TS ALLIANCE RESEARCH WEBINAR & TELECONFERENCE ARCHIVES

Sudden, Unexpected Death from Epilepsy (SUDEP) -- February 18, 2014

This webinar was presented by Orrin Devinsky, MD. Download Dr. Devinsky’s slides or watch the recording of the webinar below.

 


Vigabatrin Associated Visual Field Loss (VAVFL): What You Need to Know -- January 27, 2014

This webinar was presented by Darcy Krueger, MD, PhD.


The Promise of Research on Seizures in TSC -- October 15, 2013

This webinar was presented by David Neal Franz, MD and Michael Wong, MD, PhD.


Research on Kidney Issues in TSC: Recent Developments and What the Future May Hold -- September 19, 2013

This webinar was presented by Dr. John Bissler.  To watch the slide presentation and listen to the audio recording, simply click below:

 

 


Mental Health Research in TSC: Recent Developments and What the Future May Hold -- August 6, 2013 

This webinar was presented by Drs. Shafali Spurling Jeste and Peter W. Newberry.  To watch the slide presentation and listen to the audio recording, simply click below:

 


New Recommendations from the TSC Clinical Conference/Update on Diagnostic Criteria for TSC -- March 5, 2013

This webinar was presented by Dr. Hope Northrup.  To watch the slide presentation and listen to the audio recording, simply click below:


Update on the Neurocognitive Clinical Trial and How Seizure Tracker Plays an Important Role -- November 15, 2011

This teleconference was presented by Dr. Darcy Krueger, Rob Moss and Dr. Mustafa Sahin.  For reference while listening, you may access Powerpoint presentations by Dr. Krueger, Rob Moss and Dr. Sahin.



High Through-Put Drug Screening to Find New Treatments for TSC -- September 26, 2011

This teleconference features Dr. John Frangioni.  View his Powerpoint presentation while listening to the call.


Seizure Tracker: Empowering Both Patients and Researchers -- May 12, 2011

Rob and Lisa Moss, founders of Seizure Tracker, are the featured speakers. View their Powerpoint presentation while you listen to the dicussion.



TSC and Special Diets -- April 13, 2011

Dr. Elizabeth Thiele presented this conference, and you can view the accompanying Powerpoint presentation.  In addition, Dr. Thiele discussed two online dietary resources you may want to visit: The Charlie Foundation and Matthew's Friends



The Development of a Topical Therapy for Facial Angiofibromas in TSC -- March 24, 2011

This conference was presented by Drs. Hope Northrup and Mary Kay Koenig.  View their Powerpoint presentation.  Also, see the List of Participating Multi-Center Clinical Trial Sites (please note: clinical trial recruitment doesn't begin until January 2012).



Neurocognition in TSC and the Neurocognition Clinical Trial -- February 15, 2011

This conference call was presented by Drs. Mustafa Sahin and Darcy Krueger.



Adults with TSC: Current Research Information -- November 9, 2010

Dr. Peter Crino discusses issues related to adults with TSC.



Kidney Involvement in TSC -- September 16, 2010

Dr. John Bissler and Dr. Vicky Whittemore discuss kidney involvement in TSC, including current clinical trials.



TSC Research Update: Unlocking the Cure -- May 11, 2010

Dr. Vicky Whittemore, Vice President & Chief Scientific Officer at the TS Alliance, provided an overview of the state of TSC research.  View her Powerpoint presentation.



Autism Spectrum Disorder and TSC -- April 26, 2010

Geraldine Dawson, PhD, and Mustafa Sahin, MD, PhD, spoke about autism spectrum disorder and TSC.  Download PDFs of the PowerPoint presentations from Dr. Sahin and Dr. Dawson to view while you listen to the recording.



Genetics and TSC -- March 31, 2010

Dr. Hope Northrup and Dr. Michael Gambello gave a presentation about the relationship between genetics and TSC.  Download a PDF of Powerpoints by Dr. Northrup here and here, or click here for Dr. Gambello's Powerpoint.



Kidney Involvement in TSC -- February 16, 2010

Dr. John Bissler and Dr. Elizabeth Henske discuss the various aspects of kidney involvement in TSC as well as current treatment options.  Access Powerpoint presentations in PDF files from Dr. Bissler and Dr. Henske.

 


Is a TSC Clinical Trial the Next Step for You? Part 1 -- October 28, 2009

Click here to replay the Oct. 28 educational teleconference featuring Dr. Martina Bebin discussing current TSC Clinical Trials.


Is a TSC Clinical Trial the Next Step for You?  Part 2 -- November 17, 2009

Click here to replay the Nov. 11 educational teleconference featring Drs. David Franz and Michael Frost. 


Tuberous Sclerosis Complex Epilepsy Surgery -- May 12, 2009

Dr. Howard Weiner, Dr. Guy McKann and Dr. Vicky Whittemore discuss TSC epilepsy surgery, including patient evaluation, surgical outcome and investigation of resected tissue.  



Update on TSC Research -- October 28 and November 11, 2008

Dr. Michael Wong, Dr. Elizabeth Henske and Dr. Vicky Whittemore discuss current TSC research, including a biomedical research overview, clinical manifestations and problems in TSC, basic TSC research and clinical trials of rapamycin in people with TSC.  View the presentation outline.

October 28:

November 11:
 


TS Alliance research teleconferences are supported by an educational grant from:


 
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