Below are publications provided by the Tuberous Sclerosis Alliance (TS Alliance). Visitors can download and read some of the publications using Adobe Acrobat Reader. Click here to go to Adobe's Web site to download a free version of Adobe Acrobat Reader.
CLICK HERE for more information on the Life Stages Guide or click on a cover below to view the guides (pdf versions). The Early Years Guide of the Life Stages Program (ages 0-5) ______________________________________The School Years Guide of the Life Stages Program (ages 6-13) ______________________________________The Young Adult Guide of the Life Stages Program (ages 14-21) ______________________________________The Adult Years Guide of the Life Stages Program (ages 21 and above)
CLICK HERE for more information on the Life Stages Guide or click on a cover below to view the guides (pdf versions).
The Early Years Guide of the Life Stages Program (ages 0-5)
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The School Years Guide of the Life Stages Program (ages 6-13)
The Young Adult Guide of the Life Stages Program (ages 14-21)
The Adult Years Guide of the Life Stages Program (ages 21 and above)
TS Alliance "Information Sheets" provide resources for additional information about tuberous sclerosis, both for families affected and to share with various physicians.
Click on the PDF link below for the "Information Sheet" that you would like to download. You will need Adobe Acrobat Reader to view the documents. Click here to go to Adobe's Web site to download a free version of Adobe Acrobat Reader.
David N. Franz, M.D., is the director of the Tuberous Sclerosis Clinic at Children's Hospital Medical Center. He also serves as associate professor of pediatrics and neurology at University of Cincinnati. He received his M.D. from Ohio State University College of Medicine, Columbus, Ohio in 1985. He completed his residency in pediatrics at Wright State University Affiliated Hospitals in Dayton, Ohio and his fellowship in neurology at Children's Hospital Medical Center in Cincinnati. Dr. Franz is a member of American Academy of Neurology, American Academy of Pediatrics and Child Neurology Society. Tracy A. Glauser, M.D. is associate professor of pediatrics and neurology at University of Cincinnati. He received his M.D. from Jefferson Medical College, Philadelphia in 1985. He completed his residency in pediatrics at Johns Hopkins Hospital in Baltimore, Maryland and a fellowship in child neurology at Children's Hospital of Philadelphia and in epilepsy and electroencephalography at St. Louis Children's Hospital.
Tracy A. Glauser, M.D. is associate professor of pediatrics and neurology at University of Cincinnati. He received his M.D. from Jefferson Medical College, Philadelphia in 1985. He completed his residency in pediatrics at Johns Hopkins Hospital in Baltimore, Maryland and a fellowship in child neurology at Children's Hospital of Philadelphia and in epilepsy and electroencephalography at St. Louis Children's Hospital.
Newsletters
PERSPECTIVE - SPRING 2006 PDF FileCover Story: "One Man's Pursuit for Health Turns Into Support for Those Affected by TSC." ______________________________________PERSPECTIVE - WINTER 2006 PDF FileFocus on National TSC Conference. ______________________________________PERSPECTIVE - FALL 2004 PDF FileThis issue focuses on volunteer appreciation and adults with TSC.______________________________________PERSPECTIVE - SUMMER 2004 PDF FileThis issue includes an update on the TSC Clinical Database. ______________________________________PERSPECTIVE - SPRING 2004 PDF FileThe TS Alliance celebrates 30 years. ______________________________________PERSPECTIVE - WINTER 2003 PDF FileThis issue reflected on the accomplishments made during 2003. ______________________________________PERSPECTIVE - FALL 2003 PDF FileThis issue highlights how the ways TS Alliance members are making a difference in communities all over the country. ______________________________________PERSPECTIVE - SUMMER 2003 PDF FileThis issue highlights how several celebrities have lent their names to raise awareness. ______________________________________PERSPECTIVE - SPRING 2003 PDF FileThis issue focuses on how the combined efforts of members of the TS community make a difference to so many. ______________________________________ PERSPECTIVE - WINTER 2002 PDF FileThis issue focuses on the many individuals who volunteer to further the TS Alliance mission. ______________________________________PERSPECTIVE - FALL 2002 PDF FileThis issue illustrates that the TS Community is an important source of support and inspiration. ______________________________________PERSPECTIVE - SUMMER 2002 PDF FileThis issue illustrates how individuals can make a difference in the TS community. ______________________________________PERSPECTIVE - SPRING 2002 PDF File"Community of Care" is the focus of this issue, with many exciting project updates. ______________________________________PERSPECTIVE - WINTER 2001 PDF FileThis issue focuses on "Strengthening our Community", highlighting the many people throughout the TS Alliance network who are making a difference. ______________________________________PERSPECTIVE - FALL 2001 PDF FileThis special issue highlights pictures and information from the 2001 National Family Conference.
PERSPECTIVE - SPRING 2006 PDF FileCover Story: "One Man's Pursuit for Health Turns Into Support for Those Affected by TSC."
PERSPECTIVE - WINTER 2006 PDF FileFocus on National TSC Conference.
PERSPECTIVE - FALL 2004 PDF FileThis issue focuses on volunteer appreciation and adults with TSC.
PERSPECTIVE - SUMMER 2004 PDF FileThis issue includes an update on the TSC Clinical Database.
PERSPECTIVE - SPRING 2004 PDF FileThe TS Alliance celebrates 30 years.
PERSPECTIVE - WINTER 2003 PDF FileThis issue reflected on the accomplishments made during 2003.
PERSPECTIVE - FALL 2003 PDF FileThis issue highlights how the ways TS Alliance members are making a difference in communities all over the country.
PERSPECTIVE - SUMMER 2003 PDF FileThis issue highlights how several celebrities have lent their names to raise awareness.
PERSPECTIVE - SPRING 2003 PDF FileThis issue focuses on how the combined efforts of members of the TS community make a difference to so many.
PERSPECTIVE - WINTER 2002 PDF FileThis issue focuses on the many individuals who volunteer to further the TS Alliance mission.
PERSPECTIVE - FALL 2002 PDF FileThis issue illustrates that the TS Community is an important source of support and inspiration.
PERSPECTIVE - SUMMER 2002 PDF FileThis issue illustrates how individuals can make a difference in the TS community.
PERSPECTIVE - SPRING 2002 PDF File"Community of Care" is the focus of this issue, with many exciting project updates.
PERSPECTIVE - WINTER 2001 PDF FileThis issue focuses on "Strengthening our Community", highlighting the many people throughout the TS Alliance network who are making a difference.
PERSPECTIVE - FALL 2001 PDF FileThis special issue highlights pictures and information from the 2001 National Family Conference.
Annual Reports
2003 Annual Report PDF FileGet the most up-to-date information about the financial position of the TS Alliance, plus reports on the major activities completed during the fiscal year.2002 Annual Report PDF File2001 Annual Report PDF File
2003 Annual Report PDF FileGet the most up-to-date information about the financial position of the TS Alliance, plus reports on the major activities completed during the fiscal year.
2002 Annual Report PDF File2001 Annual Report PDF File
Brochures
TS ALLIANCE RESOURCE BROCHURE PDF FileThe purpose of this brochure is to explain the various publications, programs and services offered through the TS Alliance. ______________________________________ AN INTRODUCTION TO TSC PDF FileThe purpose of this brochure is to explain TSC and its variable features; outline some of the commonly needed medical tests; and to help individuals cope with the diagnosis. The TS Alliance exists to provide the guidance, support, services and networking to make dealing with this disorder a little bit easier.______________________________________Mi niño tiene Esclerosis Tuberosa: UN FOLLETO PARA PADRES PDF File
TS ALLIANCE RESOURCE BROCHURE PDF FileThe purpose of this brochure is to explain the various publications, programs and services offered through the TS Alliance.
AN INTRODUCTION TO TSC PDF FileThe purpose of this brochure is to explain TSC and its variable features; outline some of the commonly needed medical tests; and to help individuals cope with the diagnosis. The TS Alliance exists to provide the guidance, support, services and networking to make dealing with this disorder a little bit easier.
Mi niño tiene Esclerosis Tuberosa: UN FOLLETO PARA PADRES PDF File
TUBEROUS SCLEROSIS JOURNAL PHASE II PDF FileTUBEROUS SCLEROSIS JOURNAL PHASE I PDF FileBecause the treatment of tuberous sclerosis may involve a variety of health care professionals, it is very useful to have a working system to track ongoing medical care and treatment. This journal was specifically designed to provide you with an organized way of keeping accurate records of medications, procedures, appointments, therapies, surgeries, tests and manifestations.If you are interested in ordering a copy or are unable to download the PDF version, please e-mail the TS Alliance at info@tsalliance.org or send a fax to (301) 562-9870. These are FREE journals, one per TS individual. There will be a $20 shipping fee for international orders.
TUBEROUS SCLEROSIS JOURNAL PHASE II PDF FileTUBEROUS SCLEROSIS JOURNAL PHASE I PDF FileBecause the treatment of tuberous sclerosis may involve a variety of health care professionals, it is very useful to have a working system to track ongoing medical care and treatment. This journal was specifically designed to provide you with an organized way of keeping accurate records of medications, procedures, appointments, therapies, surgeries, tests and manifestations.
If you are interested in ordering a copy or are unable to download the PDF version, please e-mail the TS Alliance at info@tsalliance.org or send a fax to (301) 562-9870. These are FREE journals, one per TS individual. There will be a $20 shipping fee for international orders.
Books
LIVING WITH TUBEROUS SCLEROSIS: STORIES OF LOVE AND HOPEThis book is a unique, direct and compassionate source of information and hope. Families will know they are not alone in their struggles with tuberous sclerosis. It contains 26 biographies, or "stories of love", by parents of mildly affected children to severely affected children, and by six adults with TS.The book is free for individuals and families who are directly affected by TS. If you are interested in receiving or ordering a copy, please e-mail the TS Alliance at info@tsalliance.org or send a fax to (301) 562-9870.______________________________________TUBEROUS SCLEROSIS COMPLEX, THIRD EDITIONThis edition includes updated information on all aspects of tuberous sclerosis, from the genetics of the disease to specific organ involvement. Newly revised diagnostic criteria are included, as well as a chapter on the impact of the diagnosis on the patient and their family. If you are interested in ordering a copy of this book, please e-mail the TS Alliance at info@tsalliance.org or send a fax to (301) 562-9870. The reduced price of the book is $76, which includes shipping and handling in the U.S. There will be an additional $15 shipping fee for international orders.______________________________________THE SWEETEST SOUND: THE MIRACLE OF TAYLOR HESSThis book weaves together a gut-wrenching medical and personal journey, including the Hess families' ups and downs, into a narrative filled with sadness, surprise and sunshine. Mrs. Hess explains how Taylor, a child with TS, has beaten the odds through various medical means to become a bright, happy child.This book can be obtained by sending a check for $12 (shipping included) to: The Sweetest Sound, P.O. Box 346, Glenwood, IA 51534. You can also order the book through the Web site www.taylorsmiracle.com. Part of the proceeds benefit the Tuberous Sclerosis Alliance.
LIVING WITH TUBEROUS SCLEROSIS: STORIES OF LOVE AND HOPEThis book is a unique, direct and compassionate source of information and hope. Families will know they are not alone in their struggles with tuberous sclerosis. It contains 26 biographies, or "stories of love", by parents of mildly affected children to severely affected children, and by six adults with TS.
The book is free for individuals and families who are directly affected by TS. If you are interested in receiving or ordering a copy, please e-mail the TS Alliance at info@tsalliance.org or send a fax to (301) 562-9870.
TUBEROUS SCLEROSIS COMPLEX, THIRD EDITIONThis edition includes updated information on all aspects of tuberous sclerosis, from the genetics of the disease to specific organ involvement. Newly revised diagnostic criteria are included, as well as a chapter on the impact of the diagnosis on the patient and their family.
If you are interested in ordering a copy of this book, please e-mail the TS Alliance at info@tsalliance.org or send a fax to (301) 562-9870. The reduced price of the book is $76, which includes shipping and handling in the U.S. There will be an additional $15 shipping fee for international orders.
THE SWEETEST SOUND: THE MIRACLE OF TAYLOR HESSThis book weaves together a gut-wrenching medical and personal journey, including the Hess families' ups and downs, into a narrative filled with sadness, surprise and sunshine. Mrs. Hess explains how Taylor, a child with TS, has beaten the odds through various medical means to become a bright, happy child.
This book can be obtained by sending a check for $12 (shipping included) to: The Sweetest Sound, P.O. Box 346, Glenwood, IA 51534. You can also order the book through the Web site www.taylorsmiracle.com. Part of the proceeds benefit the Tuberous Sclerosis Alliance.
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