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LIVING WITH TUBEROUS SCLEROSIS COMPLEX

Tuberous sclerosis complex (TSC) manifests itself in many different ways, but one factor individuals with TSC have in common is that they must live with the disorder their entire lives. As children, it means that their parents must face issues regarding education, health insurance and socialization, among others. 

As young adults, some of those affected by TSC may have to deal with a transition to independent living and employment while others may deal with dating issues and reproductive concerns. Throughout their lives, those affected with TSC must live with a permanent medical condition. This section provides resources and information for such issues.

• Education
• Family Support
• Teen to Adult Options
• Financial Planning
• Guardianship
• Independent Living Options
• Self-Advocacy