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LIVING WITH TUBEROUS SCLEROSIS COMPLEX

Tuberous sclerosis complex (TSC) manifests itself in many different ways, but one factor individuals with TSC have in common is that they must live with the disorder their entire lives. As children, it means that their parents must face issues regarding education, health insurance and socialization, among others. 

As young adults, some of those affected by TSC may have to deal with a transition to independent living and employment while others may deal with dating issues and reproductive concerns. Throughout their lives, those affected with TSC must live with a permanent medical condition. This section provides resources and information for such issues.


 
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    A message from Julianne Moore     Infantile Spasms & TSC: A Devastating Diagnosis     La Esclerosis Tuberosa (Spanish Intro to TSC)


ABOUT TSC
What is TSC?
How is TSC Diagnosed?
Signs of TSC
Genetics of TSC

INDIVIDUALS & FAMILIES
Living with TSC
Family Support
Adult Resources

TSC Connect
Brochures & Booklets
Information Sheets
Life Stages Guides & Personal Journals

Perspective Magazine Archives
TSC Clinics

RESEARCHERS
TS Alliance Grants Program
Other TSC Funding Opportunities
TSC Alert Newsletter Archives
Clinical Trials
TSC Natural History Database
Research Resources
International Scientific Advisory Board

Tuberous Sclerosis Alliance Online CommunityTuberous Sclerosis Alliance Support Community